BEING PUSHED TOWARDS HYSTERECTOMY.... NOT KEEN AFTER READING ABOUT THE DARK side

[Elderflower j58]

@Birdie

Thanks so much for responding I am trying to put together a protocol and will need all the help I can get,
Problems I think I have
1) metabolism definitely not up to par maybe a bit broken
2) not consuming enough calories even though I'm actually overweight
3) I think I definitely need some thyroid medication but I'm pretty scared and don't know how to use it with my heart condition... doctor definitely will not prescribe.
4) I am aiming for some improvements in my health obviously to deal with this surgery on the 29th

 

[Elderflower j58]

Can anyone help me with iodine and selenium dosage for my smaller cyst.
I have no blood test to prove I am low in iodine but I think I am definitely oestrogen dominant and I don't eat enough food with iodine. All guidance gratefully received

 

[Elderflower j58]

Anyone?

BUMP

 

[Ildikó]

Anyone?

BUMP

I believe Dr Peat is not supporting the idea of taking iodine at all, for your estrogen dominance taking aspirin, vitamin E, Progesteron is suppose to be benefical lowering it.

 

[Ildikó]

Anyone?

BUMP

And also, the most important would be not eating, supplementing anything which has estrogenic estrogenic effect on your body.

 

[Elderflower j58]

@Ildikó
Thank you so much for responding I've only just realised you left a longer post that I completely missed.
You appear somewhat similar to me with your health problems as in... large cyst on ovary and and your high cholesterol.

Unfortunately in my case they say my very high cholesterol has caused my heart disease . I was diagnosed with familial hypercholesterolaemia I'm still waiting on a diagnosis for a blood clotting disorder.. no idea when that will come
My surgery is a laparotomy, you say you had a laparoscopy I'm assuming this is some sort of keyhole surger?
The gyno says laparotomy is my only option as the cyst has to come out intact.
Even though my decision is made about no hysterectomy obviously the ovary connected to the cyst more or less will have to come out she is still piling on the pressure pretty relentlessly. She said the smaller cyst on the other ovary is 5 cm and I'm willing to try and take care of that myself something like you did with yours.
she also said that one is a functional cyst.

I am using using progesterone aspirin vitamin E and vitamin D vitamin K.
Yes I am avoiding most oestrogenic things.. foods etc



I am still pretty much conflicted regarding iodine as there is lots of information saying how important is for hormonal health especially cystic breasts and ovaries and how many people are deficient due to soil degradation.

I I suppose taking iodine in physiological doses might be ok but probably not enough to deal with this situation I will have to do more research

 

[Ildikó]

@Ildikó
Thank you so much for responding I've only just realised you left a longer post that I completely missed.
You appear somewhat similar to me with your health problems as in... large cyst on ovary and and your high cholesterol.

Unfortunately in my case they say my very high cholesterol has caused my heart disease . I was diagnosed with familial hypercholesterolaemia I'm still waiting on a diagnosis for a blood clotting disorder.. no idea when that will come
My surgery is a laparotomy, you say you had a laparoscopy I'm assuming this is some sort of keyhole surger?
The gyno says laparotomy is my only option as the cyst has to come out intact.

Because my pre surgery results did not indicate any reason not to go ahead with the laparoscopy that was the reason to do it this way but probably the frozen slice testing they do during surgery showed that my cyst had some abnormal cell. After the surgary when i talked to my gynea he said wait for the pathology result before he can say anything for sure. The result came back borderline ovarian tumor and I was advised to have radical hysterectomy, everything out to prevent possible later issues. So I had two surgeries within a year. The pathology came back all clear, if I did not have the hysterectomy it would have been a constant worry for me not knowing if I have the desiese on my organ somewhere else.

Even though my decision is made about no hysterectomy obviously the ovary connected to the cyst more or less will have to come out she is still piling on the pressure pretty relentlessly. She said the smaller cyst on the other ovary is 5 cm and I'm willing to try and take care of that myself something like you did with yours.
she also said that one is a functional cyst.

Hopefuly your big cyst is benign and you will not have to worry, did your gynae say that she could just remove your smaller cyst from your other ovary if possible?

I am using using progesterone aspirin vitamin E and vitamin D vitamin K.
Yes I am avoiding most oestrogenic things.. foods etc



I am still pretty much conflicted regarding iodine as there is lots of information saying how important is for hormonal health especially cystic breasts and ovaries and how many people are deficient due to soil degradation.

The Myth of Iodine Deficiency: An Interview with Dr. Ray Peat – Functional Performance Systems (FPS)

www.functionalps.com

I I suppose taking iodine in physiological doses might be ok but probably not enough to deal with this situation I will have to do more research

 

[Kaur Singh]

Hi - I haven't read through the thread. Just wanted to say that there is one podcast where Peat mentions a woman that got rid of a tumor/cyst/mass (can't remember which). I remember she had a somewhat higher HR for a few months as it shrunk down (implying that her metabolism 'sped up' to get rid of it.

You can use this search engine to find it:
Bioenergetic Search

You symptoms scream high estrogen and the need for progesterone to me (all of them)
If your doctor won't give you thyroid, there are other ways to get them.
Also, since you are in the UK, you may be able to connect with Paul Robinson and his community online
and they may be able to refer a doctor that may.

You can start thyroid with micro-doses - look up Nemo to see how she did it.
This way you can gauge effects, if you are concerned about the heart.
Tiny doses - 0.10 mcg, slowly titrated

Godspeed!

 

[Blossom]

How are you doing @Elderflower j58?

 

[Elderflower j58]

How are you doing @Elderflower j58?

I am healing well, a bit slower than I would like.. But I'm sure everything takes longer the older you get.
I asked beforehand could they take a photograph of the cyst as I was very interested in the size especially when they had said previously it was the size of a large watermelon, they said someone took a photo but nobody has got back to me with that image.
Two days post surgery my weight had reduced by 13lbs so it was large enough.
I'm glad to be rid of it and no hysterectomy.... they removed the ovary that the cyst had enveloped
also the fallopian tube it was connected to.

Thanks for your concern Blossom ?

 

[Blossom]

I am healing well, a bit slower than I would like.. But I'm sure everything takes longer the older you get.
I asked beforehand could they take a photograph of the cyst as I was very interested in the size especially when they had said previously it was the size of a large watermelon, they said someone took a photo but nobody has got back to me with that image.
Two days post surgery my weight had reduced by 13lbs so it was large enough.
I'm glad to be rid of it and no hysterectomy.... they removed the ovary that the cyst had enveloped
also the fallopian tube it was connected to.

Thanks for your concern Blossom ?

I’m so glad to hear it!

 

[Ildikó]

I am healing well, a bit slower than I would like.. But I'm sure everything takes longer the older you get.
I asked beforehand could they take a photograph of the cyst as I was very interested in the size especially when they had said previously it was the size of a large watermelon, they said someone took a photo but nobody has got back to me with that image.
Two days post surgery my weight had reduced by 13lbs so it was large enough.
I'm glad to be rid of it and no hysterectomy.... they removed the ovary that the cyst had enveloped
also the fallopian tube it was connected to.

Thanks for your concern Blossom ?

Happy healing time?, i am sure you are relieved that your cyst has gone ?

 

[Peatful]

I am healing well, a bit slower than I would like.. But I'm sure everything takes longer the older you get.
I asked beforehand could they take a photograph of the cyst as I was very interested in the size especially when they had said previously it was the size of a large watermelon, they said someone took a photo but nobody has got back to me with that image.
Two days post surgery my weight had reduced by 13lbs so it was large enough.
I'm glad to be rid of it and no hysterectomy.... they removed the ovary that the cyst had enveloped
also the fallopian tube it was connected to.

Thanks for your concern Blossom ?

Even young- that’s a big surgery.
Don’t be hard on yourself.

Very glad you are on the other side now.

 

[Elderflower j58]

Hi all
Some bad news, I was recalled to the hospital and consultant on Friday, they informed me that the cyst contained cancer grade 1to2 they said .
Not sure if that means it's nearer 1 or nearer2 would like to know no but no more information .
They have referred me from the Royal Free Hospital London to university College hospital London and the recommendations for a full radical hysterectomy.
This is all without seeing cancer anywhere else in my body from the scans I have received but a lot of ifs and maybe's best thing to do for survival.

Below is my my final report and pathology, I am having some difficulty disyphering as it is all jargon to me me but also has been printed slightly off. So left side is missing some letters/words.

Anyone who can understand these printouts or can help me understand more about my condition I would be greatly appreciate their help.

Thank you in advance

 

[Ildikó]

Hi all
Some bad news, I was recalled to the hospital and consultant on Friday, they informed me that the cyst contained cancer grade 1to2 they said .
Not sure if that means it's nearer 1 or nearer2 would like to know no but no more information .
They have referred me from the Royal Free Hospital London to university College hospital London and the recommendations for a full radical hysterectomy.
This is all without seeing cancer anywhere else in my body from the scans I have received but a lot of ifs and maybe's best thing to do for survival.

Below is my my final report and pathology, I am having some difficulty disyphering as it is all jargon to me me but also has been printed slightly off. So left side is missing some letters/words.

Anyone who can understand these printouts or can help me understand more about my condition I would be greatly appreciate their help.

Thank you in advance

View attachment 32793View attachment 32794

Hi, i am sorry to hear your pathology result, but looking on the bright side the tumor has been taken out.
My situation was a little similiar to yours.
I can only share the experience what i had with my ovarian tumor with borderline feature only. Pre surgery all of my tests and scans came back negative with no signs of borderline tumor.
First i also had the laparoscopic bilateral oophorectomy and my gyne suggested abdominal radical hysterectomy (omentum, cervix, uterus some lymph glands). I needed a few weeks to make my decision on either going along with it or not.
At the end i have agreed and had the operation, it was a difficult choice between having a huge burden on my mind all the time what if the cells were spreading to any of my surrounding organ and watching out for any little signs of pain or abnormal happening inside my body. SStraight after my surgery my onco-gyne said that he did not see any signs of implants on my organs nearby.
All the pathology report came back negative after the surgery which was a relief but i had to go for check- ups every four month for 3 years and now I only go once a year. It is all clear, but i will make sure that even if they will not require the once yearly follow up i will go privately just to be sure of things.
Unfortunately no matter what type of scans they make they cannot be sure if any of the nearby organs are affected unless they open up.
I am 61 now had my surgery 3 years ago, so well passed menopause. I am well, but the surgery has caused my postmenopausal hot flashes and night sweats to reappear . I am taking oral micronized progesterone for my insomnia, my gyne did not want to prescribe because he said that the progesterone does not do anything benefical at my age (Huh? dont agree after learning Dr Peat's knowledge about progesterone) So I get it from my local friend pharmacyst without the prescription.
My advice is if you decide to go ahead with the radical hysterectomy make sure that you choose an onco-gyne, I suppose if there is cancer cells involved in the pathology they do refer you to an onco-gyne specialist.
The surgery will have an effect on the thyroid function also, i am mildly hypothyroid and taking t4 and t3 supplementation it has helped to lower my cholesterol and generaly feeling better.
I wish you well no matter what decision you make at the end.
I am sorry if i made little mistakes, english is not my nature language :)

 

[Elderflower j58]

@Ildikó
Thank you for your response much appreciated.
I just find myself in such a quandary about what path to take, I'm still very much leaning towards no hysterectomy.
But I'm obviously very scared also dealing with family pressure telling me to do the right thing.... even though I don't think it could be the right thing.
Last night I was remembering back to the when she told me it was cancer and why did I come in alone.
I did get very emotional and cried was very scared but then I said to myself hang on a minute, they said the cyst has cancer... but the cyst is not in my body anymore and all of the previous scans showed nothing of concern anywhere else.
I have been reading about all of the natural cures against cancer the information is so extensive and finding it hard to decipher.
Also trying to to understand the pathology note... cancer markers some of them they're some of them not there the words benign borderline and cancerous where used.
I just feel so alone dealing with it all myself and my family is not on my side.
I am also not in the position financially to find a functional or holistic doctor to help me.
But I suppose on a more positive note I have two to three weeks before I'm called to the new hospital so I can do a bit of deep diving and trying to learn everything I need to know.

 

[Ildikó]

?@Ildikó
Thank you for your response much appreciated.
I just find myself in such a quandary about what path to take, I'm still very much leaning towards no hysterectomy.
But I'm obviously very scared also dealing with family pressure telling me to do the right thing.... even though I don't think it could be the right thing.
Last night I was remembering back to the when she told me it was cancer and why did I come in alone.
I did get very emotional and cried was very scared but then I said to myself hang on a minute, they said the cyst has cancer... but the cyst is not in my body anymore and all of the previous scans showed nothing of concern anywhere else.
I have been reading about all of the natural cures against cancer the information is so extensive and finding it hard to decipher.
Also trying to to understand the pathology note... cancer markers some of them they're some of them not there the words benign borderline and cancerous where used.
I just feel so alone dealing with it all myself and my family is not on my side.
I am also not in the position financially to find a functional or holistic doctor to help me.
But I suppose on a more positive note I have two to three weeks before I'm called to the new hospital so I can do a bit of deep diving and trying to learn everything I need to know.

I fully understand your situation, the best thing you can do is research on forums where women are sharing similar experiences with ovarian tumors and may be you will find some answers to your conserns.
Very difficult decision but i am sure you will make the one you feel is right for you.
Wish you luck?

 

[Happycat]

It's very hard, especially if your family is not on your side, but at least you have this forum where you can get some advice and support.

I think you are so right when you said that the cancer was inside the cyst and the cyst is not in your body anymore. So there may not be any cancerous cells anywhere else, why would they want to take your womb and other ovary out if they haven't found anything wrong with them?

 

[Elderflower j58]

@Happycat
My sentiments exactly, and it looks like the only way they can tell if there was/is cancer even after hysterectomy is the pathology histology on the organs they remove??

 

[Elderflower j58]

Just to add I did get my oestrogen and progesterone tested and my progesterone was 4 oestrogen was 119.

The progesterone was blood
The estradiol was serum.

I'm very obviously not dosing enough progesterone