Electrisio
Member
- Joined
- Feb 25, 2017
- Messages
- 73
I have already done a few posts on here over the last couple of years of various symptoms I have been facing that I can't really find a solution to. I am a 28-year-old male with a few health problems seriously reducing the quality of my life. At this point, I feel like I've pretty much-tried everything and the healthcare system in my country (UK) hasn't been able to diagnose me yet. I am looking for suggestions on what kind of tests I could perhaps look into getting, ie beyond the typical recommendations that an average GP makes.
These are my symptoms/observations:
1. Strong heartbeat/bounding pulse. This is 24/7, feels very uncomfortable, and stops me from getting deep sleep. I have uploaded this video which shows what it is like:
View: https://www.youtube.com/watch?v=BtvVc_r5FCA
.
My heart is relatively large (not super large) and my blood volumes are high, I have a top of the range stroke volume. My heart rate is on the lower end, around 50, blood pressure is 100/60 ish. I have had a cardiac MRI, echocardiogram, holter, ecg and blood tests. Blood tests show that my RBC/HCT/Haemoglobin are high but shouldn't be enough to cause a problem and thyroid is fine. B1/B12 are also fine. I tried beta blockers, but they actually made my symptoms worse. The same goes for SSRIs, I tried them to see if it was anxiety but again it made it worse. I have seen my main cardiologist and got a second opinion, both of which work for the most prestigious cardiology departments in London. Neither of them has seen a case like this.
2. Acid reflux. I had a burning sensation in my chest which was resolved by taking a PPI. I recently had a barium swallow that (weirdly) showed I didn't have any reflux (or a hernia).
3. My symptoms are much worse after eating, especially the pulse and from eating carbs. Sometimes my heart pounds after eating and it actually feels slightly difficult to talk, almost like a slight breathlessness. I don't get breathless at any other time.
4. Supplements also cause a lot of problems. I now don't take any except electrolytes and magnesium. Vitamin D in particular seems to trigger it like crazy and the same goes with vitamin d from food. What is also strange is some forms of supplements are fine and others aren't. For example, magnesium citrate will cause a bad reaction whilst bis-glycinate causes no reaction. Another thing is that I am hypersensitive to supplements. I can break up a pill and have the tiniest amount and get both a very strong effect from the supplement and also trigger the heart. I feel like this could indicate what exactly is wrong? When I was younger I had no problem with supplements.
Being at a point where regular healthcare isn't finding anything is pretty frustrating/scary. Although I am a patient presenting with heart issues, given my figures are within range, I can't help but suspect that there is something going on somewhere else. I find it very difficult to focus on other things apart from this as the symptoms consume my conscious existence. Could I be stuck in some super-deep state of stress? Perhaps a stealth pathogen or extreme food intolerance? I came across a comment on youtube of someone with a bounding pulse saying they discovered it was histamine intolerance. I have just started a low histamine diet in case.
What tests I could look into? Something testing by gut biome looking for bacteria? Or a wide range of minerals/vitamins? Any thoughts on how I could approach this would be much appreciated!
These are my symptoms/observations:
1. Strong heartbeat/bounding pulse. This is 24/7, feels very uncomfortable, and stops me from getting deep sleep. I have uploaded this video which shows what it is like:
View: https://www.youtube.com/watch?v=BtvVc_r5FCA
.
My heart is relatively large (not super large) and my blood volumes are high, I have a top of the range stroke volume. My heart rate is on the lower end, around 50, blood pressure is 100/60 ish. I have had a cardiac MRI, echocardiogram, holter, ecg and blood tests. Blood tests show that my RBC/HCT/Haemoglobin are high but shouldn't be enough to cause a problem and thyroid is fine. B1/B12 are also fine. I tried beta blockers, but they actually made my symptoms worse. The same goes for SSRIs, I tried them to see if it was anxiety but again it made it worse. I have seen my main cardiologist and got a second opinion, both of which work for the most prestigious cardiology departments in London. Neither of them has seen a case like this.
2. Acid reflux. I had a burning sensation in my chest which was resolved by taking a PPI. I recently had a barium swallow that (weirdly) showed I didn't have any reflux (or a hernia).
3. My symptoms are much worse after eating, especially the pulse and from eating carbs. Sometimes my heart pounds after eating and it actually feels slightly difficult to talk, almost like a slight breathlessness. I don't get breathless at any other time.
4. Supplements also cause a lot of problems. I now don't take any except electrolytes and magnesium. Vitamin D in particular seems to trigger it like crazy and the same goes with vitamin d from food. What is also strange is some forms of supplements are fine and others aren't. For example, magnesium citrate will cause a bad reaction whilst bis-glycinate causes no reaction. Another thing is that I am hypersensitive to supplements. I can break up a pill and have the tiniest amount and get both a very strong effect from the supplement and also trigger the heart. I feel like this could indicate what exactly is wrong? When I was younger I had no problem with supplements.
Being at a point where regular healthcare isn't finding anything is pretty frustrating/scary. Although I am a patient presenting with heart issues, given my figures are within range, I can't help but suspect that there is something going on somewhere else. I find it very difficult to focus on other things apart from this as the symptoms consume my conscious existence. Could I be stuck in some super-deep state of stress? Perhaps a stealth pathogen or extreme food intolerance? I came across a comment on youtube of someone with a bounding pulse saying they discovered it was histamine intolerance. I have just started a low histamine diet in case.
What tests I could look into? Something testing by gut biome looking for bacteria? Or a wide range of minerals/vitamins? Any thoughts on how I could approach this would be much appreciated!