Hey I need some advice on what to my son has a brain tumor we have been on and off chemo for almost 6 years and have tried mutilple therapy from this forum. Yesterday we had another MRI and it grew by 10%. We have been off chemo (avastin) for 6 months. Over a year ago they stopped chemo and it grew by 30% in 3 months. So it seems that something is working to atleast slow it down. What we have been doing is for the past 6 months is
Oxidal 3-6
Cyproheptadine 2mg
Niacinamide 2 x 70mg
Kuinone 20 drops topically
Vitamin d 5000 iu 5-6 drops topically
Retinal palmitate 5000 8-10 drops topically
In the past few weeks we've added
Tyromax 2 drops with dinner ( may have to up due body temp still very low waking temp 96)
Lapodin 20 drops orally
Panquinone 8 drops orally
Magoil 20 drops topically
Mitolipin 40 drops on food
The schedule is breakfast
Panquinone and niacinamide Orally
Topically kuinone, vitamin a and d
With dinner
Oxidal, niacinamide, cyproheptadine, tyromax,lapodin , mitolipin orally
Topically
Magoil
I know it's a lot of stuff and don't know if something should be added or subtracted but I'm trying everything because our next step is harsh chemo and possibly radiation. My son is only 6 and we found out when he was only 6 months old . Like I said yesterday the MRI said it grew by 10% but the doctor wants to monitor it for a month or two before doing any additional chemo so I'm trying everything I can to not need more chemo for him. We have changed our diets our man foods now are chocolate milk, cooked apples, mashed potatoes, ground beef, eggs,grapes and raisins , orange juice, ice cream, mac and cheese ( I know it's not perfect but he's 6). I don't know how to tag anyone but if someone could tag haidut for me it would be appreciated
Ps just started last night half of a 325mg pill aspirin dissolved with dinner also
Oxidal 3-6
Cyproheptadine 2mg
Niacinamide 2 x 70mg
Kuinone 20 drops topically
Vitamin d 5000 iu 5-6 drops topically
Retinal palmitate 5000 8-10 drops topically
In the past few weeks we've added
Tyromax 2 drops with dinner ( may have to up due body temp still very low waking temp 96)
Lapodin 20 drops orally
Panquinone 8 drops orally
Magoil 20 drops topically
Mitolipin 40 drops on food
The schedule is breakfast
Panquinone and niacinamide Orally
Topically kuinone, vitamin a and d
With dinner
Oxidal, niacinamide, cyproheptadine, tyromax,lapodin , mitolipin orally
Topically
Magoil
I know it's a lot of stuff and don't know if something should be added or subtracted but I'm trying everything because our next step is harsh chemo and possibly radiation. My son is only 6 and we found out when he was only 6 months old . Like I said yesterday the MRI said it grew by 10% but the doctor wants to monitor it for a month or two before doing any additional chemo so I'm trying everything I can to not need more chemo for him. We have changed our diets our man foods now are chocolate milk, cooked apples, mashed potatoes, ground beef, eggs,grapes and raisins , orange juice, ice cream, mac and cheese ( I know it's not perfect but he's 6). I don't know how to tag anyone but if someone could tag haidut for me it would be appreciated
Ps just started last night half of a 325mg pill aspirin dissolved with dinner also
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