Brain Cancer stage 4 glioblastoma giant cells. What options are available?

[mrchibbs]

I know she often forces herself to eat what i give her like juices, fish etc because she wanna see me happy and my father aswell she never ask for food, never. She always feeling "full" but still eats. I always said to her if she is not really hungry then she can skip some meal but she eats to make us happy i think.. i mean no way she likes gelatin but still eats it and says like "it was fine" .. i worry she is stressing herself doing this and making herself worse.

Btw.. i can put cyproheptadine on some piece of fruit like mango and give it to her? Or i can put in some juice or something? It is so gross that taste i tried 1 drop on my tongue and it is awful. Same with pyrucet, i can put it in OJ @Nemo ?

The drops aren't supposed to be gross...they should be easy to take. You can add the drops to something like applesauce, but honestly I and many others have used it for a long time, it's not gross at all and it will make a big difference with her appetite.

Maybe try to reduce her portion size, she shouldn't stuff herself to make you guys happy. Don't have her skip meals because that may lower her blood sugar too much, but instead give her small snacks instead of big meals.

Try to talk with her and discuss openly about what is more palatable to her.

Gelatin on its own is unpalatable and irritating to the intestine, it should always be diluted in something. If she likes hot chocolate you can add gelatin to that.

 

[Mito]

Same with pyrucet, i can put it in OJ @Nemo ?

Haidut comment in Pyrucet thread:
“Ethyl acetoacetate itself is a powerful penetration enhancer, so it absorbs quite well through the skin. That is why we use it as one of the solvents in some other products. It is listed s FEMA 2415 on the label. As far as absorption, I feel about the same from using the same dose topically or orally. The topical route takes longer to manifest systemically though, maybe about 30min.”

Pyrucet - Liquid (ethyl) Pyruvate/Aceatoacetate Mix

I too ordered Pyrucet the day it was available. 20 drops orally seems to palpably increase hunger so definitely make sure you're in a thoroughly fed state or give with sugar to offset. Other than that, nothing profound to report yet. I am primarily taking for exercise performance as an analog to...

raypeatforum.com

 

[mrchibbs]

@Mito

Nice one! The topical route should really be the default approach when possible.

 

[Nemo]

I know she often forces herself to eat what i give her like juices, fish etc because she wanna see me happy and my father aswell she never ask for food, never. She always feeling "full" but still eats. I always said to her if she is not really hungry then she can skip some meal but she eats to make us happy i think.. i mean no way she likes gelatin but still eats it and says like "it was fine" .. i worry she is stressing herself doing this and making herself worse.

Btw.. i can put cyproheptadine on some piece of fruit like mango and give it to her? Or i can put in some juice or something? It is so gross that taste i tried 1 drop on my tongue and it is awful. Same with pyrucet, i can put it in OJ @Nemo ?

I just rubbed Pyrucet into my wrists, egoy. She doesn't have to eat it. As @Mito said, this stuff absorbs well.

I would do cypro on her wrist too so you don't have to ruin the bite of mango.

I remember feeling full like this all the time after the surgery and I went through the same thing with my mother. I'd have to work an hour to get her to drink a couple of ounces of OJ and maybe 1 small bite of cheese. Maybe two blueberries. I'd ask if she'd like me to cook some favorite food for her and she'd say yes, then eat a teaspoon of it. That would be her entire dinner.

We're both still here.

I think you're doing fine. You and your father are urging her to eat stuff that will help her and she's doing the best she can. I think that's absolutely great.

You just keep going exactly as you are. I'm very impressed that you've got your father working with you. That will be a big help.

 

[Nemo]

That is very encouraging indeed, especially the weight gain. Now if she can get her appetite back that's the next step.

Agree 100%. @egoy, this is a terrific sign.

 

[Nemo]

That being said, I see no problem with substituting progesterone for the aforementioned drugs, and going with Ray's suggestions as well.

I'd do it in a heartbeat.

 

[Nemo]

Thank you so much ! I will be keeping up with her treatment she is feeling overall better and her face got much younger since she uses progesterone and dhea and other stuff i got recommended here. She even gained some weight I am so happy for her also my family noticed her condition improving and it did increased our hope so much. This positive change in so short period of time is really astonishing. Ty again !

When I was getting sicker with cancer I can assure you I was not gaining weight or looking younger or feeling better. The decline was noticeable daily.

These are fantastic signs, @egoy.

 

[Nemo]

Haidut just discussed another person who has cured herself of an aggressive cancer using Pyrucet.

This is a Bulgarian woman who used Pyrucet for Stage 4 lung cancer. The tumor has completely disappeared. Metastasis gone. All the woman used was Pyrucet and Vitamin K2.

So we now have it working on multiple different types of aggressive tumors in humans as well as extending life of mice in cancer studies.

Starts at 1:23:00.


View: https://www.youtube.com/watch?v=8nLw0X2Ee_M

 

[llian]

Haidut just discussed another person who has cured herself of an aggressive cancer using Pyrucet.

This is a Bulgarian woman who used Pyrucet for Stage 4 lung cancer. The tumor has completely disappeared. Metastasis gone. All the woman used was Pyrucet and Vitamin K2.

So we now have it working on multiple different types of aggressive tumors in humans as well as extending life of mice in cancer studies.

Starts at 1:23:00.


View: https://www.youtube.com/watch?v=8nLw0X2Ee_M

Interesting find ! Thank you ! I see great results myself with my mother she gets better everyday it is unbelievable, her appetite got slightly better and she craves OJ, sugarly apple juice now and i find out that if i put 10g gelatin in 400mg of juice she cant even feel the taste of gelatin there. Everything is going great now, in 2 months she will get a head scan from doctors that initially did surgery on her i hope the results will be in our favor

 

[Nemo]

Interesting find ! Thank you ! I see great results myself with my mother she gets better everyday it is unbelievable, her appetite got slightly better and she craves OJ, sugarly apple juice now and i find out that if i put 10g gelatin in 400mg of juice she cant even feel the taste of gelatin there. Everything is going great now, in 2 months she will get a head scan from doctors that initially did surgery on her i hope the results will be in our favor

Egoy, this is fantastic! She is craving sugar now!

Shifting back to healthy, non-cancer metabolism!

 

[mrchibbs]

Egoy, this is fantastic! She is craving sugar now!

Shifting back to healthy, non-cancer metabolism!

Absolutely! Hopefully this keeps going because if she gets a taste for sugar and continues to improve her oxidation, that will get her farther and farther from the state that caused her cancer.

@egoy I don't know if you can find good ripe oranges but if you could that would be so amazing. Freshly squeezed *sweet* OJ is the nectar of the gods. Obviously sweet apple juice is great too.

You can make marmalade from organic oranges peel and that is also profoundly anti cancer with a supply of naringenin and other flavonoids. Ray has a few quotes about it.

 

[llian]

Should i lower her NDT dosage? @Nemo @mrchibbs @Inaut @BearWithMe
I give her about 1 grain throughout the day but her resting heart rate got up to 105 BPM but her blood pressure is very low 87/59 it is so weird. Also body temperature is 36.1°C in the morning - 36.4°C after eating.
But the most concerning thing i think it is her hyperventilating crisis where she fights to breath with mouth open and her hands shaking all the time like she has Parkinston disease(she didn't had this before)
Is this a sign of hyporhyroid? I dont understand.. what about 87 blood pressure why is this so low? Her salt intake is pretty high.

 

[lampofred]

Bag breathing and increasing B6 intake can lower high heart rate and hyperventilation caused by panic attacks and excess adrenaline. Thyroid might be dropping blood sugar too much (causing adrenaline to rise) and depleting B6. Things like aspirin will also deplete B6.

Just a possibility, not saying that that's the case for certain. But honestly fighting to breathe with mouth open sounds a bit worrying. Have you considered letting your doctor know what you're doing, maybe by showing him/her the evidence behind what you're trying and just keeping your doctor updated regularly.

 

[llian]

Bag breathing and increasing B6 intake can lower high heart rate and hyperventilation caused by panic attacks and excess adrenaline. Thyroid might be dropping blood sugar too much (causing adrenaline to rise) and depleting B6. Things like aspirin will also deplete B6.

Just a possibility, not saying that that's the case for certain. But honestly fighting to breathe with mouth open sounds a bit worrying. Have you considered letting your doctor know what you're doing, maybe by showing him/her the evidence behind what you're trying and just keeping your doctor updated regularly.

Yes i tried that but he instead of giving me some proper advice and explanation if what i am doing is good or bad he just called me crazy and in his opinion "doesn't work like that" . Majority of doctors in my area are very ignorant and just pushing this chemotherapy nonsense like it is the only way cancer can be treated... very frustrating.
I thought of doing some blood tests to her to check prolactin, TSH and so on.. should i do this?
Btw today when she had a crisis like that trying to breath with mouth open i gave her a bag to breath in it and she got better after. I think she still have problems with oxidizing sugar i think of upping her pyrucet dosage or give her Meldonium too.
Btw i give her Energin so the B6 deficiency it is unlikely but still possible since maybe gets depleted by 500mg B1 and niacinanide megadoses of 3g . I should try dropping NDT or lowering it to see if she gets better?
Also why the shake hands tho?

 

[sweetpeat]

Should i lower her NDT dosage? @Nemo @mrchibbs @Inaut @BearWithMe
I give her about 1 grain throughout the day but her resting heart rate got up to 105 BPM but her blood pressure is very low 87/59 it is so weird. Also body temperature is 36.1°C in the morning - 36.4°C after eating.
But the most concerning thing i think it is her hyperventilating crisis where she fights to breath with mouth open and her hands shaking all the time like she has Parkinston disease(she didn't had this before)
Is this a sign of hyporhyroid? I dont understand.. what about 87 blood pressure why is this so low? Her salt intake is pretty high.

The NDT might be pushing her metabolism too hard at this time. I think you said she struggles to eat enough? If that's still the case, she might not be getting enough fuel yet to handle the NDT, plus all the other metabolism boosting supplements. You could try lowering the dosage and see if that helps. If you end up having to drop it altogether, you can always reintroduce it at a later time.

 

[llian]

Bag breathing and increasing B6 intake can lower high heart rate and hyperventilation caused by panic attacks and excess adrenaline. Thyroid might be dropping blood sugar too much (causing adrenaline to rise) and depleting B6. Things like aspirin will also deplete B6.

Just a possibility, not saying that that's the case for certain. But honestly fighting to breathe with mouth open sounds a bit worrying. Have you considered letting your doctor know what you're doing, maybe by showing him/her the evidence behind what you're trying and just keeping your doctor updated regularly.

This is what im giving to her atm, i should drop something from here?
-1 tbsp ACV+1 tbsp MCT+carrot + camphosal+ Defibron in the morning
-coffee
-3g aspirin + 3g niacinamide + 10drops Kuinone untill 12AM
-12d Retinil , 8d Calcirol , 1x Monekin tablet,
25d Energin at 12AM
-Pyrucet 25drops throughout the day
-NDT 1grain throughout the day
-5d cortinon + 100drops Progestene + progesterone pharma cream on her inflamed leg
-500mg Lysine with any meat meal
-Melanon 8drops
-Tocovit 400 IU 3x/week
-Oxidal 8drops
-Lapodin 25drops
-Cyproheptadine 4mg at night
-Magnoil at night
-Acetazolamide 500mg 8 hours distance from last aspirin dosage usually at night...

I introduced Naloxone injection yesterday her breathing and shaky hands still didnt improved but her blood pressure got from 8.7 to 10.5 and everything remain the same.

 

[Motif]

I would maybe look that she gets enough trace minerals in and that her digestion works proper. Maybe some bitter drops to meals, doesn’t need be the whole recommended dose.

trace minerals cause I think it’s crazy underrated.
My inflammation in the body improved about 80% since eating canned oysters for zinc and copper and adding boron and selenium.

 

[Sulcuscentralis]

What would be the reason for using radioactive glucose to locate/label cancerous growth, if not for the fact that cancer cells preferentially utilize glucose as energy substrate? If you have heard otherwise, or have information regarding a different mechanism of action, I would love to read about this.

As far as I know from medical school for locating tumors they use methionine pet ct scan and

What would be the reason for using radioactive glucose to locate/label cancerous growth, if not for the fact that cancer cells preferentially utilize glucose as energy substrate? If you have heard otherwise, or have information regarding a different mechanism of action, I would love to read about this.

As far as I know from medical school for locating tumors the use radioactive methionine and for radioactive glucose is used for locating inflammatory lesions and the two are a good way to differentiate between the too, since tumors have a much higher protein demand because of it’s multiplying nature.

 

[youngsinatra]

I can barely handle 3g of niacinamide and when I do I need 4k + calories and lots of carbs to also supply enough fuel for so much metabolic stimulation. I think she needs more sugar.

Giving her a constant supply of good fruit juice with some collagen peptides (maybe superior to gelatin, because it dissolves completely in cold liquids) and clean salt would be my way to go. Maybe dissolving some EAAs in juice, when she doesn’t eat enough protein from whole foods.

 

[Nemo]

Should i lower her NDT dosage? @Nemo @mrchibbs @Inaut @BearWithMe
I give her about 1 grain throughout the day but her resting heart rate got up to 105 BPM but her blood pressure is very low 87/59 it is so weird. Also body temperature is 36.1°C in the morning - 36.4°C after eating.
But the most concerning thing i think it is her hyperventilating crisis where she fights to breath with mouth open and her hands shaking all the time like she has Parkinston disease(she didn't had this before)
Is this a sign of hyporhyroid? I dont understand.. what about 87 blood pressure why is this so low? Her salt intake is pretty high.

Egoy, you're giving her an awful lot of pro-metabolic stuff and their positive effects overlap.

It's too much all together. I went through the same thing.

I'd take some of it down a bit. I'd take niacinamide down to 25 mg 2x a day, so 6 drops Energin 2x a day, both times with food or juice. Since you just started thyroid and went straight to a full grain, I'd take it down to half a grain divided up through the day with food. (Did you have a good reason for starting her on NDT?)

I'd cut either aspirin or Pyrucet or both in half. If it were for me, I'd take aspirin down to 2 pills a day and keep Pyrucet at 20 drops. (I truly believe Pyrucet was key to my beating cancer.) Pyrucet at 20 drops may still be too much for your mom to handle, but let's see.

I'd take Kuinone down to 3ish drops. I'd take Cortinon down to 2 drops. (Even Ray said he had trouble taking more than 2-3 mg of DHEA a day.) I'd cut Oxidal for now (maybe reintroduce 1 drop a day down the road, or even better a microdose).

I'd probably cut the Camphosal and DeFibrin for now. I'd cut Cypro to one drop at night. I'd cut Acetazolamide to 250 mg. I'd probably drop the Lysine for now. I'd drop the Melanon for now. Looks like a great product, but not as essential as the other stuff at the moment.

I'd do 1/4 tsp of ACV rather than 1 tablespoon.

I'd either cut Lapodin right now or take it down to a drop. Your Mom needs to catch up on her nutrition to handle all this pro-metabolic stuff.

And you may need to cut more.

Look at it this way, a lot of people would be taking 20 drops of Pyrucet a day AND THAT'S ALL. And they'd likely reverse their cancer.

Or they'd be taking the aspirin and acetazolamide and Energin AND THAT'S ALL.

The entire time I was in a cancer metabolism, I never got to over 3 drops of Pyrucet a day with food. I simply couldn't handle more. But three drops was enough. I can take more now that I'm healthy. When you read the Pyrucet thread, note that all the guys saying they took 20 drops and felt nothing are athletes, not cancer patients. I would say that your mother's ability to handle all this pro-metabolic stuff at these doses this long means she's a tough cookie.

There's another recent thread here where a man used ONE drop of Oxidal and it was too much. I think 8 drops would kill me even now. Doc Sandoz recommended microdosing the Oxidal, using 1/100th of a drop, even less. And he's right.

The dose that a fully-healthy person can handle often overwhelms a cancer patient. You don't want to overwhelm her, because that just leads to cortisol and adrenaline, the opposite of what she needs.

Don't think that the smaller dose isn't doing a LOT of good. It is.

How is it going with the progesterone? Still doing 200 mg per day? I would be taking that down to a more normal level as well. You don't want to be stingy with it, but not 200 mg per day at this point.