I am presenting everyone with a very curious Case . Around February 2021 I noticed a numbness on the right side of my clitoris. In addition to this numbness, I would get random burning pain throughout the day. And the pain continued . It was horrible, searing pain in my clitoris, accompanied with pain along my spine and lower back. The numbness began to spread . In about three months, I noticed that every time I ate sweets Immediately felt this random burning plane. I stopped eating sweets and this reduced the pain but I still got it randomly, and the numbness continue to spread.
I started going to doctors appointments. I went to the gynecologist multiple times. I got my hormones checked they were normal. I got MRIs and ultrasounds and they came back normal. Doctors gaslit me and told me that the loss of sensation in my genitals was an emotional problem. Meanwhile I could place an ice cube on the affected area and not feel it. I saw a pelvic floor therapist in September of 2021, and while I discovered that I had overactive pelvic floor muscles, I did not see improvement in my pain or numbness, despite going to pelvic floor therapy until December and being consistent with my exercises. In fact, I continued to get worse. During this time I was prescribed topical estrogen cream.
In summer of 2022 I suddenly realized that all carbs triggered pain and numbness for me. Bread, rice, potatoes, sweet potatoes, tomatoes, large portions of vegetables. Literally, all of it caused immediate pain and numbness. I guess I hadn’t made this connection at first because the pain is sharper and more intense with high sugar things like pastries and fruit.
So I got on keto, but I continued to face problems. Even small amounts of carbs from keto approved vegetables were giving me pain! I was strictly eating less than 20 grams of carbs a day. Pain and numbness persisted. At this point I’d lost about 60% of the sensation in my clitoris and vagina. After two months of that, I got extremely discouraged I started eating normally again because I was confused.
The pain became less intense, but only because numbness so profound . I currently have a renewed vigor for healing myself. I’ve been on the carnivore diet for about two months. For the most part, I avoid triggering pain. ive I exclusively been eating meat, fish, cheese, sour cream, mayonnaise(I’ve just learned the negative affects), and eggs but this is not a solution and it’s not sustainable. I cannot survive without my body being able to process carbs. I’m extremely fatigued.I miss fruits and vegetables, and I’m afraid of developing other health problems because of my carnivore diet. I’m afraid of food because I’m afraid of pain and losing more gential sensation (I’ve lost around 70%). I’m obsessed with this problem and it causes me lots of stress and frustration every day. I have a high libido and this has been pretty devastating to me. furthermore, I’m afraid of what might happen if my pudendal nerve is exposed to further insult; I fear I may began to suffer from issues like incontinence.
I’ve been looking into Ray Peat and I am hopeful. His writings on blood sugar and diabetes were particularly of interest to me. (Though I’m not diabetic my body cannot properly digest or tolerate carbs/sugar and it’s causing neuropathy so I think the symptoms of whatever I have mimic diabetes). The pain I have experienced has created an antagonistic relationship with fruits and vegetables. I don’t know where to start or what I can implement from his teaching currently. The idea of drinking a glass of orange juice or eating a carrot salad is filling me with anxiety to even think about. Should I start with supplementation of some kind? I’m currently taking vitamin D ,as I was deficient. I really have no idea what to do.
Additional information
I am 21 years old, BMI 22.6, and I have no other known health conditions. This problem started right before I turned 19
Diabetes is common in my family but my blood sugar test came back normal
I was severely vitamin d deficient to the point of having bone pain in 2020. I got to healthy levels using supplements, but was advised to taper off of them after reaching healthy levels (37 ng/ml). I have been struggling with vitamin d deficiency for years. At age 15 my blood test showed my vitamin D level was 9 ng/ml. The healthiest/ highest my vitamin d levels have been on a blood test were 37 ng/ml. I was experiencing bone pain again back in May, and after getting blood tests, discovered that my vitamin D was 19 ng/ml. I am taking supplements right now and pain has subsided. For reference standard vitamin D levels range between 20 ng/ml and 96 ng/ml
I had a UTI like infection for a couple months in 2020 that went away immediately after I took antibiotics, even though I did not test positive for a UTI or a yeast infection .
I was on SSRIs from the age 12 and to 18. I am mediately discontinued use after turning 18. Right before I turned 18 I was briefly put on antipsychotic meds that raised my prolactin levels and triggered lactation. Milk/fluid did not dry up completely until I turned 20.
While I did keto, I still consumed mayonnaise and deli meat. I avoided using seed oils to cook but primarily because I cook using butter. I wasn’t avoiding them as harshly as I do now
While I did keto I still consumed diet beverages. I noticed sometimes diet beverages, trigger numbness, and pain.
Stevia and sugar alcohols tend to trigger pain and numbness
Coffee can also trigger numbness and pain in the excess
The pain and numbness is most noticeable on my clitoris, but it also affects my vagina, my right foot, my tail bone in random places in my spine. For this reason, I think that my pudendal nerve is being affected.
Pain and numbness start it out definitively on the right side, but now both sides are affected. I generally feel pain more strongly on the right side however
I started going to doctors appointments. I went to the gynecologist multiple times. I got my hormones checked they were normal. I got MRIs and ultrasounds and they came back normal. Doctors gaslit me and told me that the loss of sensation in my genitals was an emotional problem. Meanwhile I could place an ice cube on the affected area and not feel it. I saw a pelvic floor therapist in September of 2021, and while I discovered that I had overactive pelvic floor muscles, I did not see improvement in my pain or numbness, despite going to pelvic floor therapy until December and being consistent with my exercises. In fact, I continued to get worse. During this time I was prescribed topical estrogen cream.
In summer of 2022 I suddenly realized that all carbs triggered pain and numbness for me. Bread, rice, potatoes, sweet potatoes, tomatoes, large portions of vegetables. Literally, all of it caused immediate pain and numbness. I guess I hadn’t made this connection at first because the pain is sharper and more intense with high sugar things like pastries and fruit.
So I got on keto, but I continued to face problems. Even small amounts of carbs from keto approved vegetables were giving me pain! I was strictly eating less than 20 grams of carbs a day. Pain and numbness persisted. At this point I’d lost about 60% of the sensation in my clitoris and vagina. After two months of that, I got extremely discouraged I started eating normally again because I was confused.
The pain became less intense, but only because numbness so profound . I currently have a renewed vigor for healing myself. I’ve been on the carnivore diet for about two months. For the most part, I avoid triggering pain. ive I exclusively been eating meat, fish, cheese, sour cream, mayonnaise(I’ve just learned the negative affects), and eggs but this is not a solution and it’s not sustainable. I cannot survive without my body being able to process carbs. I’m extremely fatigued.I miss fruits and vegetables, and I’m afraid of developing other health problems because of my carnivore diet. I’m afraid of food because I’m afraid of pain and losing more gential sensation (I’ve lost around 70%). I’m obsessed with this problem and it causes me lots of stress and frustration every day. I have a high libido and this has been pretty devastating to me. furthermore, I’m afraid of what might happen if my pudendal nerve is exposed to further insult; I fear I may began to suffer from issues like incontinence.
I’ve been looking into Ray Peat and I am hopeful. His writings on blood sugar and diabetes were particularly of interest to me. (Though I’m not diabetic my body cannot properly digest or tolerate carbs/sugar and it’s causing neuropathy so I think the symptoms of whatever I have mimic diabetes). The pain I have experienced has created an antagonistic relationship with fruits and vegetables. I don’t know where to start or what I can implement from his teaching currently. The idea of drinking a glass of orange juice or eating a carrot salad is filling me with anxiety to even think about. Should I start with supplementation of some kind? I’m currently taking vitamin D ,as I was deficient. I really have no idea what to do.
Additional information
I am 21 years old, BMI 22.6, and I have no other known health conditions. This problem started right before I turned 19
Diabetes is common in my family but my blood sugar test came back normal
I was severely vitamin d deficient to the point of having bone pain in 2020. I got to healthy levels using supplements, but was advised to taper off of them after reaching healthy levels (37 ng/ml). I have been struggling with vitamin d deficiency for years. At age 15 my blood test showed my vitamin D level was 9 ng/ml. The healthiest/ highest my vitamin d levels have been on a blood test were 37 ng/ml. I was experiencing bone pain again back in May, and after getting blood tests, discovered that my vitamin D was 19 ng/ml. I am taking supplements right now and pain has subsided. For reference standard vitamin D levels range between 20 ng/ml and 96 ng/ml
I had a UTI like infection for a couple months in 2020 that went away immediately after I took antibiotics, even though I did not test positive for a UTI or a yeast infection .
I was on SSRIs from the age 12 and to 18. I am mediately discontinued use after turning 18. Right before I turned 18 I was briefly put on antipsychotic meds that raised my prolactin levels and triggered lactation. Milk/fluid did not dry up completely until I turned 20.
While I did keto, I still consumed mayonnaise and deli meat. I avoided using seed oils to cook but primarily because I cook using butter. I wasn’t avoiding them as harshly as I do now
While I did keto I still consumed diet beverages. I noticed sometimes diet beverages, trigger numbness, and pain.
Stevia and sugar alcohols tend to trigger pain and numbness
Coffee can also trigger numbness and pain in the excess
The pain and numbness is most noticeable on my clitoris, but it also affects my vagina, my right foot, my tail bone in random places in my spine. For this reason, I think that my pudendal nerve is being affected.
Pain and numbness start it out definitively on the right side, but now both sides are affected. I generally feel pain more strongly on the right side however
