Hi everyone,
First question post. In my intro I give a detailed background, but not recent info. Was dx'd with Fibro, CFS, MCS, MS and then Lyme with co's a decade ago. Have had ups and downs treating. Lately I came across information regarding vascular EDS, MCAS and IIH and how they are often co-morbidities - giving the same symptoms as mine. And it made so much sense! (This doctor made a connection also with the vagus nerve and IIH) Maybe there is a vascular component (possibly hereditary) as to why some of us are getting so sick and are so sensitive and others are not.
Anyway, I have been suffering immensely lately from a horrible headache. (I've had some type of headache probably 85% of my life, but this one is relentless.) I absolutely believe it is due to IIH. Usually the answer to this is to take Diamox. I tried it and it made me very sick.
I believe the better answer is to improve vein health. About 10 years ago I was taking a lot of MSM and after about 15 months my veins went from being a phlebotomists nightmare, to amazing! That being said, it took some time. I am wondering what other additional supplements could be taken to improve vein health? Just about ready to order some Magnoil, but maybe there are a few others I should add in.?? Thanks!
First question post. In my intro I give a detailed background, but not recent info. Was dx'd with Fibro, CFS, MCS, MS and then Lyme with co's a decade ago. Have had ups and downs treating. Lately I came across information regarding vascular EDS, MCAS and IIH and how they are often co-morbidities - giving the same symptoms as mine. And it made so much sense! (This doctor made a connection also with the vagus nerve and IIH) Maybe there is a vascular component (possibly hereditary) as to why some of us are getting so sick and are so sensitive and others are not.
Anyway, I have been suffering immensely lately from a horrible headache. (I've had some type of headache probably 85% of my life, but this one is relentless.) I absolutely believe it is due to IIH. Usually the answer to this is to take Diamox. I tried it and it made me very sick.
I believe the better answer is to improve vein health. About 10 years ago I was taking a lot of MSM and after about 15 months my veins went from being a phlebotomists nightmare, to amazing! That being said, it took some time. I am wondering what other additional supplements could be taken to improve vein health? Just about ready to order some Magnoil, but maybe there are a few others I should add in.?? Thanks!