beachbum
Member
- Joined
- Nov 10, 2014
- Messages
- 423
- Age
- 60
Please dont thick some of us don't do research, you have NO idea the leg work I did, I just wanted to compare things I may have missed that I can try, I guess I will check out freddd's experience then.It didn't for me. But I think I was severely deficient due to decades of poor diet and poor digestion. Might for you. I would think, though, that you might have to eat them every day, at least for a while, and they're high in PUFA and fat, which is not good for a fatty liver. Eggs might compound the problem if there's liver dysfunction involved. I don't mean liver disease, but like a dysfunctional pre-disease state that's not detectable by standard labs (like I was in for years). But I dunno. Everyone's different. You could try.
If you've changed your diet and feel less stressed that could mean things are changing for the better. There's a whole constellation of symptoms and criteria that go into a diagnosis of CFS, and in fact I was never formally diagnosed. I got onto a CFS discussion board because I was interested in a supplement protocol, and then as I began to tangentially learn more about CFS I realized that's what was wrong with me, and I had a lot of symptoms. I knew I often got dizzy upon standing, for example, and my heart rate would fluctuate fairly severely depending upon whether or not I was standing or lying down, but it never occurred to me that that was something diagnosable. I was that stupid. I just thought it was my weird physiology since it had happened off and on for as long as I could remember. But turns out it's Postural Orthostatic Tachycardia Syndrome (POTS), which is one of the criteria for CFS (as is PEM).
Worth noting is that there are degrees of severity, too. My POTS was never acutely chronic, and most of my life it was pretty scattershot. Didn't get bad or frequent until I was feeling my worst, and even then was not nearly as bad as some poor souls have it. Some people can't even stand up. These days mine is pretty much gone. I get it once in a great while, but even less than when I was younger.
Might try googling "CFS criteria" or something similar to see exactly what goes into a diagnosis.
Yeah, that's a BIG topic and it's not that simple. It's quite complex. I'm sorry, but I just can't get into giving a lot of advice about it because the complexity, and also the side effects can be disagreeable and I can't be responsible for trying to guide someone through it. I'm not a doctor or any kind of healthcare professional. Plus there are numerous co-factors that could be involved in getting everything to "go" properly, and not the same co-factors work for everyone. Some people get a lot of good out of SAM-e, for example, but it only worked for about a week for me before turning bad on me.
How I got started is I educated myself and then tried some things, and kept educating and kept going. I actually mentioned a lot of supps in my post above that can get someone started on researching it. If you're really interested, my advice is to go to Phoenix Rising
Phoenix Rising ME / CFS Forums
and read up on posts by user Freddd to decide if it's something you want to try. His posts are what got me onto it. Get a grasp of what you might be doing and what you might be in for from doing some reading. Then try something. That's what worked for me. I can try to give help after you've gotten started but I just don't have time to get someone up to speed on the topic. That's legwork you have to do. Sorry to be so blunt but that's what it is. Once you start reading Freddd's posts I think you'll see why I say that. But Freddd's protocol can be a very worthwhile undertaking. Good luck, let me know how it goes!
Thank you