evergreen
Member
Hello all.
I came upon this work several years ago postpartum with twins and made leaps and bounds of progress with my own hypothyroid perimenopausal state. This August one of my three year old twins began having tonic clonic seizures and I was in the belly of the beast of allopathic medicine and seizure meds ( Keppra) in what seemed like the blink of a fear induced moment. I have been reading since then, attempting to reverse engineer our way off of these meds if possible, and see what a bioenergetic viewpoint would be to the situation. My daughter is a modi twin “identical” and her sister has not had seizures. She had almost 3 months seizure free on 200 MG Keppra 2 x’s daily.
She had two breakthrough seizures around Thanksgiving that then amplified into a day this past week where she had three in one day that increased in intensity and were almost entirely in her brain/head. It was terrifying. We ended up at Children’s Hospital via ambulance and with an intense increase in the meds, of course. She had an upper respiratory infection at the time. About 12 days before this, I had replaced her prescribed b6 pyridoxine 50 mg. Daily with P5P ( I was dosing it under 50 but between 25-35) now that I have learned more about that I realize it was way too high. They hand out this B6 suggestion as a blanket solution to the mood changes with the anti-seizure meds.
I have been a bit in a frozen state with what to give her but have been intermittently giving vitamin E, C, probiotic, beef liver freeze dried, magnesium bicarbonate.
So far I have done an HTMA, GMAP, homeopathic protocol, she is seeing a chiropractor twice a week. We consulted with a “Peatish” pediatric functional nutrition coach and I have seen some nutrition folks who are more in the typical no sugar/ no dairy for seizures camp. I have had a consult with someone who specializes in CBD/THC for pediatric epilepsy in the UK Who claims/seems to have helped many families.
I’ve been waiting until I was more clearheaded to post here but given the sleep deprivation and extreme anxiety of the situation that may take a minute. I’m doing my best to keep myself energetically strong and balanced to be there for my family. Thank you to those who have shared a very detailed accounts of their healing. I will keep reading. Our next step is waiting for the results of our genetic test ( taking all of that with a grain of salt of course) and going through with a sedated MRI so we can see if there is a structural piece to any of this. She did have a substantial injury one year ago where a wine bottle fell from the top of the fridge and hit her ( and her sister) in the head. They both had bruises on their temple area. I gave Arnica for several days and she seemed to have no signs of concussion. She’s also had lead exposure from the house we live in. we medicate it as much as possible as we attempt to move to a new place. She is showing high for lead and traces of aluminum and cadmium on her HTMA. Her blood lead is showing 2 d/ cl. The snapshot shows a kid with low stomach acid, sluggish gallbladder, high toxicity, H pylori, candida. She is already going through so much. If I knew that these intense diets of no sugar and no dairy with the whole day I would do it. I just instinctually don’t think that is the way. She intensely craves honey, sweets which I stick to berries, figs and as clean of carbs as I can get her to do. She does a good bit of grass fed beef, eggs, butter and some goat yogurt. She’s less into smoothies and getting more picky so it’s hard to get vitamin E, magnesium, D, C in the way that I was used to being able to sneak it in.
Thanks for reading and for any thoughts.
I came upon this work several years ago postpartum with twins and made leaps and bounds of progress with my own hypothyroid perimenopausal state. This August one of my three year old twins began having tonic clonic seizures and I was in the belly of the beast of allopathic medicine and seizure meds ( Keppra) in what seemed like the blink of a fear induced moment. I have been reading since then, attempting to reverse engineer our way off of these meds if possible, and see what a bioenergetic viewpoint would be to the situation. My daughter is a modi twin “identical” and her sister has not had seizures. She had almost 3 months seizure free on 200 MG Keppra 2 x’s daily.
She had two breakthrough seizures around Thanksgiving that then amplified into a day this past week where she had three in one day that increased in intensity and were almost entirely in her brain/head. It was terrifying. We ended up at Children’s Hospital via ambulance and with an intense increase in the meds, of course. She had an upper respiratory infection at the time. About 12 days before this, I had replaced her prescribed b6 pyridoxine 50 mg. Daily with P5P ( I was dosing it under 50 but between 25-35) now that I have learned more about that I realize it was way too high. They hand out this B6 suggestion as a blanket solution to the mood changes with the anti-seizure meds.
I have been a bit in a frozen state with what to give her but have been intermittently giving vitamin E, C, probiotic, beef liver freeze dried, magnesium bicarbonate.
So far I have done an HTMA, GMAP, homeopathic protocol, she is seeing a chiropractor twice a week. We consulted with a “Peatish” pediatric functional nutrition coach and I have seen some nutrition folks who are more in the typical no sugar/ no dairy for seizures camp. I have had a consult with someone who specializes in CBD/THC for pediatric epilepsy in the UK Who claims/seems to have helped many families.
I’ve been waiting until I was more clearheaded to post here but given the sleep deprivation and extreme anxiety of the situation that may take a minute. I’m doing my best to keep myself energetically strong and balanced to be there for my family. Thank you to those who have shared a very detailed accounts of their healing. I will keep reading. Our next step is waiting for the results of our genetic test ( taking all of that with a grain of salt of course) and going through with a sedated MRI so we can see if there is a structural piece to any of this. She did have a substantial injury one year ago where a wine bottle fell from the top of the fridge and hit her ( and her sister) in the head. They both had bruises on their temple area. I gave Arnica for several days and she seemed to have no signs of concussion. She’s also had lead exposure from the house we live in. we medicate it as much as possible as we attempt to move to a new place. She is showing high for lead and traces of aluminum and cadmium on her HTMA. Her blood lead is showing 2 d/ cl. The snapshot shows a kid with low stomach acid, sluggish gallbladder, high toxicity, H pylori, candida. She is already going through so much. If I knew that these intense diets of no sugar and no dairy with the whole day I would do it. I just instinctually don’t think that is the way. She intensely craves honey, sweets which I stick to berries, figs and as clean of carbs as I can get her to do. She does a good bit of grass fed beef, eggs, butter and some goat yogurt. She’s less into smoothies and getting more picky so it’s hard to get vitamin E, magnesium, D, C in the way that I was used to being able to sneak it in.
Thanks for reading and for any thoughts.
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