Also dealing with severe post witdhrawal syndrome from benzos given for the Alpha/delta sleep disorder common with lyme/ cfs....I'm some years off benzo but sleep is totally disabling. Can't drive, read much at all (or follow what people are saying), difficult to sit up even. Part of this is just the cfs/lyme, but the sleep prob exacerbates it 10 fold. Been peating about five months now I think. Not sure how to move forward, everything I try seems to backfire.
To address gut: Milk, fruit or juice pushthe SIBO distension (huge painful gut after consuming those). Yet eating potatoes as carbs may cause endotoxins (I feel like i tolerate potatoes much better than fruit though). I seem ok with parmesan. Antibiotics like xifaxin and neomycin in past did not help SIBO and caused horrific exhaustion without ability to sleep (though this is common reaction for me with majority of supplements and meds). ABX in penicilan or doxy class gave anaphylactic shock. I do carrot salads but don't see benefit i'm aware of.
Some (perhaps like East West healing) suggest that sibo, candida, infections, etc are not the problem, but rather that the metabolism is. Most of the advice I'm hearing is to raise my metab. Adding carbs five months ago did help energy a tad, but I'm not improving since then and further attempts to raise my metabolism seem to bring same kind of reactions...severe exhaustion, massive sugar cravings not relieved by eating sugar, insomnia/ alpha delta sleep worsening, and often dark or dim vision and mood problems.
Have tried T3 (even 1/8 of a 5 mcg pill brings exhaustion, dim vision and massive unquenchable sugar cravings), T3 with levo, dessicated thyroid (armour), and at the least get crushing exhaustion and weakness. Seems my body cannot produce the energy being requested of it, and "circuits get blown".
Coffee I frequently get exhaustion and have very bad mood drop. Aspirin I feel - just nasty. Cascara was helpful for a few weeks, then had the shakey/panic thing (never had panic or anxiety before). Recently tried B1 and 2 to improve glucose metab for better thryoid tolerance and it may help, but I get depression/ "poisoned" response to b1.
I know my sleep is the biggest issue because my body needs the sleep to have energy. I am doing everythign i can to heal from the benzo withdrawal syndrome, but feel in a catch 22...maybe cant sleep cuz im toxic, but can't get un-toxic with dietary and supplment limitations.
I've been lucky to have family support (after long time without understanding and support) and have started somatic massages (emotional and physical therapy) that help sense of wellbeing short term, but has not helped my sleep yet. Doing counseling too. Im incredibly frustrated. But do my best to find some joy...I volunteer and play as I am able.
Input appreciated. Thank you.
To address gut: Milk, fruit or juice pushthe SIBO distension (huge painful gut after consuming those). Yet eating potatoes as carbs may cause endotoxins (I feel like i tolerate potatoes much better than fruit though). I seem ok with parmesan. Antibiotics like xifaxin and neomycin in past did not help SIBO and caused horrific exhaustion without ability to sleep (though this is common reaction for me with majority of supplements and meds). ABX in penicilan or doxy class gave anaphylactic shock. I do carrot salads but don't see benefit i'm aware of.
Some (perhaps like East West healing) suggest that sibo, candida, infections, etc are not the problem, but rather that the metabolism is. Most of the advice I'm hearing is to raise my metab. Adding carbs five months ago did help energy a tad, but I'm not improving since then and further attempts to raise my metabolism seem to bring same kind of reactions...severe exhaustion, massive sugar cravings not relieved by eating sugar, insomnia/ alpha delta sleep worsening, and often dark or dim vision and mood problems.
Have tried T3 (even 1/8 of a 5 mcg pill brings exhaustion, dim vision and massive unquenchable sugar cravings), T3 with levo, dessicated thyroid (armour), and at the least get crushing exhaustion and weakness. Seems my body cannot produce the energy being requested of it, and "circuits get blown".
Coffee I frequently get exhaustion and have very bad mood drop. Aspirin I feel - just nasty. Cascara was helpful for a few weeks, then had the shakey/panic thing (never had panic or anxiety before). Recently tried B1 and 2 to improve glucose metab for better thryoid tolerance and it may help, but I get depression/ "poisoned" response to b1.
I know my sleep is the biggest issue because my body needs the sleep to have energy. I am doing everythign i can to heal from the benzo withdrawal syndrome, but feel in a catch 22...maybe cant sleep cuz im toxic, but can't get un-toxic with dietary and supplment limitations.
I've been lucky to have family support (after long time without understanding and support) and have started somatic massages (emotional and physical therapy) that help sense of wellbeing short term, but has not helped my sleep yet. Doing counseling too. Im incredibly frustrated. But do my best to find some joy...I volunteer and play as I am able.
Input appreciated. Thank you.