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iLoveSugar

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I have spent the last week or so really trying my hardest to work on my food, in correct proportions. I have been trying to keep it very simple, mostly eating Mozarrella cheese sticks with Pepsi (real sugar), an egg a day with Pepsi, little bits of salt throughout the day, meat 1-3x per week with sugar. Fruit consumption has been nil since it's limited here with good fruits, and my appetite isn't calling for it at all. Also using about 5-10 drops of energin each day along with getting under my light lamp, and tanning 1-2x per week.

Some days I reach 2,000 cal, other days only about 1500.

My bowels are very hard, hemmrhoids don't help. I'm having a hard time waking up, and my entire body just aches of malaise. My brain fog persists, as well as my body seems to be in constant nervous mode and almost as if I tremble underneath. Wired, but tired. Really hard to explain. And of course at night before bed, I finally feel awake and can't fall asleep for the life of me, usually until 3-4AM. Feed and hands are constant icicles as well, and NOTHING warms them.

I'll continue to try and balance meals. Lab work from a bunch of recent tests included as well.
 

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messtafarian

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Well...23Kda is a Lyme specific band and your ELISA is still positive.

I think you still have Lyme and I believe it would help to repeat treatment. I know Peat does not believe in "chronic Lyme" but the test you took is not calling it "chronic" -- that's a positive test.
 
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iLoveSugar

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Treatment has not worked and I don't know what other treatment to try. Abx makes me want to die from the severe dizziness. I can't just ''power' through it.
 

messtafarian

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iLoveSugar said:
post 104107 Treatment has not worked and I don't know what other treatment to try. Abx makes me want to die from the severe dizziness. I can't just ''power' through it.

I know. I tried a round of doxy on my own at the beginning of this year and had the most frightening symptoms anyone could imagine. I am still not sure if I have Lyme or not because the tests have been negative ( no labcorp positive ELISA) -- but I still have shellshocked memories from that doxy. *It should not have affected me that way if I did not have Lyme.*

So now I'm working on getting a proper test from Germany.

In the meantime I've read an awful lot about this, and the bottom line is -- ILS, you've got it and you have to treat it. There are alternative strategies, ways to manage reactions, and people who know how to do it. You may not have to tough it out as miserably under the guidance of the right practitioner.

If your immune system was going to kick it out on its own it would have done so by now.

We have to deal with the world as it is, cousin.
 
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Sea

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messtafarian said:
Well...23Kda is a Lyme specific band and your ELISA is still positive.

I think you still have Lyme and I believe it would help to repeat treatment. I know Peat does not believe in "chronic Lyme" but the test you took is not calling it "chronic" -- that's a positive test.


I have head Peat talk about lyme in one of the radio shows. He basically said that antibiotics like minocycline can treat it with around a 1 month course, but that the person also needs to increase their metabolism which is why some people with lyme don't get better with antibiotics. And, I would think just increasing the temp and pulse rate a lot and keeping it high(100+ pulse) then the body would probably be able to beat most infections even without antibiotics.
 

tara

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Hi ILS,
I can't remember how you did with cascara sagrada? That constipation seems like a severe problem. Sometimes tinkering with dose can get better results with it.
Lot's of people find cheese constipating, especially in large quantities.
If your current experiment doesn't improve things, I reckon a week with no milk or cheese could be worth a go to at least see if it improves motility, and maybe some other things too?
 

Lilac

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A while back, I came to the conclusion that mozzarella from the supermarket (the kind wrapped in plastic) constipated me. I have since that time avoided cheeses made with enzymes only. I feel I do well with cheeses made with rennet or animal rennet (don't know if those two things are the same or different). These are usually from Europe. I eat a lot of Jarlsberg Lite, which is made in the U.S.—under supervision of the Norwegians, the label assures us! Good luck.
 

Dean

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I used to see Jarlsberg cheese everywhere, but lately I've been looking for it and unable to find it. Was thinking maybe the Republican congress had slapped an embargo on that socialist menace of Norway, laying the groundwork for a Pres. Rubio or Cruz's war against the world.
 

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did you try clonidine?
 
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iLoveSugar

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Not yet. I have no idea why I am taking it to be honest. I just know I seen it makes me incredibly drowsy, so was waiting. On top of that, I am on my 3rd day of Periactin again, and didn't want to interfere with that.
 
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iLoveSugar

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Tara, the cascara does seem to help a little with 1/2 tspn, but it doesn't help with the bowels being hard. I go, but still hard to go and not relieving.
 

tara

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iLoveSugar said:
post 104346 Tara, the cascara does seem to help a little with 1/2 tspn, but it doesn't help with the bowels being hard. I go, but still hard to go and not relieving.
Does this continue the same over a few days? I expect the first one or two movements are old stuff, so still dry because of this. Does it start to soften up after a couple of days?
If not, maybe the cheese (and/or milk) could be the culprit?
 
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iLoveSugar

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It does continue. And I just don't know about the milk and cheese causing it because I have definitely experimented with it out of my diet. If I had a solid game plan for foods other than cheese/milk, I would try it, but starch makes me feel so lethargic it's awful.
 

SQu

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A bit more cascara?
Clonidine is calming and the drowsiness soon stops.
 
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iLoveSugar

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Current temps are 95.7 and pulse is 72. What would that indicate? And I have sweats, sweatshirt, and socks on. Can't warm up for nothing.
 
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iLoveSugar

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Of the hundreds of things that do not work for me, I finally found the one thing that does help me topically. I deal with cold sores, and I have never been able to get them under control. I bought some DMSO, and it cleared them up overnight.
 
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iLoveSugar

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I wish I could feel forever how Klonopin makes me feel. I need to figure out why this works so well, but nothing else does.
 

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iLoveSugar said:
post 105179 I wish I could feel forever how Klonopin makes me feel. I need to figure out why this works so well, but nothing else does.

Have you tried niacinamide? It has been compared to Valium on the forum.
 
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Sea

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iLoveSugar said:
post 104687 Current temps are 95.7 and pulse is 72. What would that indicate? And I have sweats, sweatshirt, and socks on. Can't warm up for nothing.

This just indicates that you are hypothyroid which we already have established. Normal temps are 98.6/80ish pulse, and to heal damage you will want to take the metabolism potentially much higher than this. Ray Peat has recommended cancer patients keep their pulse at 130 for several months. I think you mainly need more calories and some extra salt to raise your temp and pulse up a bit closer to normal which should allow you to start taking advantage of supplements.
 
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iLoveSugar

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Upping nutrition is easier said than done in my current state. Trust me, I am forcing done as much as my body can handle. Avoiding starches, I am pounding as much milk and cheese as possible, with sugar and coke, and liver and oysters. I'm doing my best with salt, currently at about 3/4 tspn a day, but it's making me quite nauseated.

Yes, I have tried (lower doses) Niacinamide but it doesn't do what Klonopin does for me. Unfortunately.
 

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