Would A Knowledgeable Doctor Be Helpful Around Here?

[Tristan Loscha]

The ME/CFS as well as Gulf War Syndrome people are doing privately funded open studies collaborating their findings across research groups around the world. They are making significant headway. They have been forced into this position due to lack of funding from the NIH.
I see this as a blessing - they are working for the patient. I have listened to dozens if not hundreds of hours of their medical symposiums for the last two years and have been greatly impressed with their headway (with the exception of a study on LDN). However, sadly, the scientists are working frantically to prove a hypothesis to get the attention of big pharma to develop a drug rather than either looking for a cure or a biohack. In one way they are being very open minded in their research and in another way so closed minded because once they have pharma's attention all research goes behind closed doors. (BTW - they have proven all types of hypothesis, far more than most any other disease, but their funding continues to be denied - thank God.) It goes without saying that getting funding is difficult, but I think it's due to the model they are using. I think there is great room for education and improvement in the marketing of fundraising for crowdsourcing/patient funded studies.

Being well aware of the corruption within universities, pharma, the cdc and fda, patients would do much better to provide funding for what ails them. I think you would be in an amazing position with support from patients. But your battle with the big guys..... IDK.

On another note, I know a doctor who does nothing but fill LDN prescriptions all day long. He is licensed in all 50 states. He might be a possibility. I also know a PA who specializes in in BHRT and does telehealth in all 50 states - both of these were in business prior to CoVid and the new relaxed rules. I think more and more doctors who are desperately trying to remain independent are looking for ways to help their patients and stay in business. We currently have a wave of doctors whose eyes are being opened - the time is now.

Recently I had an appointment with an out of state doctor (6 hours away and I'm not driving more than down the street right now) and they were certain they couldn't do telehealth with me. I pushed them to look into it further. One option we discussed was for me to drive to my doc in their state (30 minutes) and have a three way conference appointment. In the end they found out that they could indeed do telehealth with me. They said it was because there wasn't such a specialist in my state but I'm not sure that was the real reason. Maybe.

If the rules aren't relaxed enough for all 50 states, then I would add WA and CA to your list.

regarding Gulf War Syndrome,one of the causes is iatrogenic.The prophylactic Malarial Mefloquine causes in subsets of consuments (Soldiers) severe Damage:





Adverse effects
Common side effects include vomiting, diarrhea, headaches, and a rash.[1] Severe side effects requiring hospitalization are rare,[10] but include mental health problems such as depression, hallucinations, anxiety and neurological side effects such as poor balance, seizures, and ringing in the ears.[1] Mefloquine is therefore not recommended in people with a history of psychiatric disorders or epilepsy.[1]

Neurologic and psychiatric
In 2013 the United States Food and Drug Administration added a boxed warning to the U.S. label of mefloquine regarding the potential for neuropsychiatric side effects that may persist even after discontinuing administration of the drug.[19][20] In 2013 the FDA stated "Neurologic side effects can occur at any time during drug use, and can last for months to years after the drug is stopped or can be permanent."[21] Neurologic effects include dizziness, loss of balance, seizures, and tinnitus. Psychiatric effects include nightmares, visual hallucinations, auditory hallucinations, anxiety, depression, unusual behavior, and suicidal ideations.

Central nervous system events requiring hospitalization occur in about one in 10,000 people taking mefloquine for malaria prevention, with milder events (e.g., dizziness, headache, insomnia, and vivid dreams) in up to 25%.[22] When some measure of subjective severity is applied to the rating of adverse events, about 11-17% of travelers are incapacitated to some degree.[13]



Furthermore:




Mefloquine was formulated at Walter Reed Army Institute of Research (WRAIR) in the 1970s shortly after the end of the Vietnam war. Mefloquine was number 142,490 of a total of 250,000 antimalarial compounds screened during the study.[3]

Mefloquine was the first Public-Private Venture (PPV) between the US Department of Defense and a pharmaceutical company. WRAIR transferred all its phase I and phase II clinical trial data to Hoffman-LaRoche and Smith Kline. FDA approval as a treatment for malaria was swift. Most notably, phase III safety and tolerability trials were skipped.[3]

The drug was first approved in Switzerland in 1984 by Hoffmann-LaRoche,[31] who brought it to market with the name Lariam.[32]

 

[Heroico]

Thanking each one of you... many helpful insights.

 

[Momentum]

regarding Gulf War Syndrome,one of the causes is iatrogenic.The prophylactic Malarial Mefloquine causes in subsets of consuments (Soldiers) severe Damage:

That is most likely part of it, but not all GW vets have GWS. What I find interesting is there is a researcher (maybe a few) who studies both because of the overlap. What is strange is GWS and ME/CFS share about 80% of the same symptoms. Additionally, IIRC, when they run their DNA they also share about 80% of the same genetic variants. The other 20% of variants are very different. In one of the researcher's presentation they did show a graph presenting the rate of onset happening prior to a set of vaccines given vs onset happening after - it also had to do with when the trauma happened. You'll have to forgive me, my brain fog has been pretty severe lately and my focus is on ME/CFS so I don't recall all of the exact details. I'll try and find the presentation in the next few days and post in a new thread.

 

[Tristan Loscha]

@Momentum
very interesting!

 

[Rich W]

@Heroico thanks for taking the time.

I'm very interested in MB. I started using it as a mouth wash and noticed significant mood improvement. So now I take .5- 1 mg a day.

What are your thoughts on daily use for a relatively healthy individual?

 

[KTownSatfats]

Here is how you spell Alzheimer's . Additionally, it is not really a " disease " since it was names after a doctor of the same name that said it was caused by amyloid plaque, which has not been debunked. So..... that is probably the reason that there is " no cure " for it. Dementia is probably what you are talking about, and Dr Peat has plenty to say about that one. So many kinds of it and most leading back to metabolic issues caused by many things. Telemedicine is great for dealing with doctors out of the USA that are not working for Big Pharma so yes on that.

I’m pretty sure Heroico’s misspelling of Alzheimer’s was a typo, perhaps akin to your using the word ‘names’ instead of ‘named’ as you probably meant.

 

[Heroico]

Rich W: It sounds to me like you are casting around for a philosophy of supplementation here. If you are really healthy I would suggest optimizing your socialization and goals so they are fundamentally satisfying for you and achievable without extreme stress. However, beginning early in adult life most people begin to deteriorate from poor diet, too much or not enough exercise of the right kind, inaequate resrotative states, pills doctors give them, emotional shocks and so on. These cause fibrosis, scarring, epigenetic restriction, and loss of capacity to respond to novelty and opportunity for further growth. A best situation is where you fit in well with your society and transform energy there effectively. That's "healthy" to me. Extraodrinary people, though, take risks, accept some scars, experiment on their bodies, and in general look at life as a disease to be improved, that experiment itself makes life worth living. I think you need to find out where you are with that. I understand RP has poor teeth and is also a beautiful human specimen, the result of a lifetime of experiments. (I think danishispsychic said somesthing in defense of his teeth along these lines.)

Anyway, re: MB, I use it as toothpaste with a few drops on baking soda. I probably get about the same amount absorbed through the oral mucosa.
It causes my blood pressure to rise a bit. It's interesting- try it if you like and let me know!

 

[Rich W]

@Heroico, not casting around for supplements. Used MB as a mouthwash because I had a tooth infection. It helped with that and also happened to lift my mood. So I continue to take it.

It seemed like you had done some research with MB, so that's why I asked about your thoughts on daily use. Do you know of any negative long term implications for daily use? I haven't found any in the studies I've come across.

 

[Heroico]

The Alzheimer’s study ran for 18 months and well tolerated the French cancer study will eventually have some mortality. It would be an easy informal mouse study for mortality but I don’t know any results. I don’t personally have any concerns as long as no isn’t chronically elevated which I don’t expect. In terms of liver redox I prefer mucosal which avoids that variable. If you come across anything else let me know!

 

[Rich W]

@Heroico thanks I'll let you know if I come across anything new.

 

[Heroico]

I just looked up mortality in mice with MB and found this Toxicology and carcinogenesis studies of methylene blue trihydrate (Cas No. 7220-79-3) in F344/N rats and B6C3F1 mice (gavage studies). - PubMed - NCBI. It was a toxicology study on rats and mice; at higher doses they died (methemoglobinemia and other things). At the two year lower dose study the dosed rats lived the same duration as the controls; the dosed mice lived longer than controls. i don't have the numbers. In general I take mortality studies on short-lived animals with agents that affect redox with a gain of salt...

 

[Dennis]

I think if you are going to call the answer as to whether vaccines cause autism, or if a particular child was injured by a vaccine, you better have a hell of a lot of experience around sick people. Not medical arrogance, And again, I don't know.

Heroico, I think a more accurate question to you is that - are you really convinced that vaccines are working the way it is intended to be working? i.e they are EXTRAORDINARY good at preventing the condition they are supposed to prevent?
( which should indirectly address the autism question partially)

 

[Philomath]

@Heroico, one of the things you might be able to do to help members here would be to share some medical insight. Specifically, how to ask for the medical tests or medicines that we need, but are difficult to get. For example, how to convince doctors that a prolactin test wold be beneficial, or to prescribe an old, off patent drug... and get it covered if it’s not in the insurance company formulary. Things like medical terminology, rules & guidelines, trials and resources - or even how to present your information to a doctor in a manner that is helpful and collaborative, and doesn’t elicit the “I’m the Doctor /stay off the internet” response
Your help and insight is appreciated!

 

[Heroico]

I don’t know how to talk a doctor into doing anything. Most judge themselves by how closely they follow their herd.

I wonder if something useful could be done in overseas sourcing of medications and crowd certifying them?

 

[Diokine]

Blake says there is a limit to contraction but no limit to expansion; thermodynamics is deeply ingrained in his psychology and physics and ultimately, his endocrinlogy- a Blakean endocrinologist

This concept was like a master key to me, I was struck dumb when I first saw it and have thought about it often since reading it. I just thought of another way of saying it.

The ways of difference are infinite, the ways of sameness are limited.

​

He who sees the Infinite in all things sees God. He who sees the Ratio only, sees himself only.​

I see, across the way
A wave, washing over a bay
Was this one
The same as the last?
Or did it
Have a name in the past?
From where it arose,
Or what way it goes,
Which of those,
which of those
is home?

 

[yerrag]

This concept was like a master key to me, I was struck dumb when I first saw it and have thought about it often since reading it. I just thought of another way of saying it.

The ways of difference are infinite, the ways of sameness are limited.

​

He who sees the Infinite in all things sees God. He who sees the Ratio only, sees himself only.​

I see, across the way
A wave, washing over a bay
Was this one
The same as the last?
Or did it
Have a name in the past?
From where it arose,
Or what way it goes,
Which of those,
which of those
is home?

What is the ratio? Is it referring to the Golden Ratio?

I can't help but think that infinity can also be evil: The ways of lying are infinite. But there is only one truth.

The shortest distance between two points in a straight line. There is no art nor abstraction. There is also no guile. Like the guile of cab drivers or the guile of propaganda writers. Words have meanings. One who knows the old ways and the black arts put hidden meanings in words. The hidden meanings slay with sharp edges. Be careful of flowery language. They are very hard to distill, as poison usually is. When distilled to safe and unsafe portions, the unsafe fizzles into ether, unseen and unheard.