I'm.No.One
Member
Okay I will try to keep this as short as possible, no promises
Quick recap:
1.) About 4ish months back, maybe 5 now, I develop sudden reactive hypoglycemia.
2.) Nothing I did really helped all that much. I will say that working with some b vitamins and copper have made the episodes less severe ( instead of dropping into the 50 range, I'll drop into the 70s).
3.) Food pairings do not matter. No they don't. There is no rhyme or reason as to what would cause me to have an episode in the terms of carbs, fats, proteins being combined or omitted. Please know my blood sugar does not climb before it drops and it can literally drop in the middle of eating.
4.) Working on my liver has done nothing and actually when I started to use things like taurine or glycine my drops happened more often so I backed off.
5.) I decided to go on a very limited raw milk, gelatin, fig, red meat/organs diet. Just felt like I needed to reset my body while also really getting in a lot of minerals.
6.) I ate during this diet only like 2 days in a small amount of steak tartare. Suddenly my mouth went numb, my lips burned, and my skin had a vague feeling of sunburn all over my face, felt slightly harder to breathe, ears began screaming. I thought maybe it had been the onion that I added. Nope, it happened the next day with just meat.
7.) Fell down the histamine rabbit hole and realize that I have a majority of not just histamine intolerance but the symptoms of mast cell activation syndrome. I don't currently go anaphylactic but I ate a fig yesterday being like oh I ate those before and they weren't a problem and I did have a very hard time breathing and ended up taking a couple Claritin.
8.) At this point, the only thing that I can currently eat over the last few days without having a pretty bad reaction is raw milk, egg yolks, mashed potatoes/butter. I'm slowly trying to figure out what other low histamine foods I can eat. I do have some freshly frozen organs and since we butcher our own animals they were literally frozen within hours of killing so should be pretty low in histamine theoretically. Especially the pork organs as it seems pork already has lower histamines?
So I feel like what happened is this problem actually presented itself when I had my first blood sugar crashes during the spring and my system has just been steadily building histamine since.
Just to say I've never had allergies in my life. I could be around the worst pollen or any animal and eat anything and it just didn't bug me.
Now it seems like anything/everything external and internal is creating a reaction.
I know that B vitamins and copper are pretty vital in helping us remove histamines, correct?
I'm also working with vitamin C from camucamu because I'm pretty sure that orange juice would kill me right now with how high in histamines it is.
I have an appointment on October 12th that took me 4 months to get with an endocrinologist. I do believe they also deal with mast cell issues. So what labs would you ask him to draw if this was you??
Anyone have sudden experience with this?
Got any great links I should read?
I know from what I've read on here, people don't think that histamine issues can be resolved, but I wonder if that's different for somebody who suddenly developed them versus a lifelong issue with them?
I'm all ears folk because at this point if I don't figure something out, I'm going to get brave and try very small amounts of MMS because it seems like I might need to eat food to continue living
Quick recap:
1.) About 4ish months back, maybe 5 now, I develop sudden reactive hypoglycemia.
2.) Nothing I did really helped all that much. I will say that working with some b vitamins and copper have made the episodes less severe ( instead of dropping into the 50 range, I'll drop into the 70s).
3.) Food pairings do not matter. No they don't. There is no rhyme or reason as to what would cause me to have an episode in the terms of carbs, fats, proteins being combined or omitted. Please know my blood sugar does not climb before it drops and it can literally drop in the middle of eating.
4.) Working on my liver has done nothing and actually when I started to use things like taurine or glycine my drops happened more often so I backed off.
5.) I decided to go on a very limited raw milk, gelatin, fig, red meat/organs diet. Just felt like I needed to reset my body while also really getting in a lot of minerals.
6.) I ate during this diet only like 2 days in a small amount of steak tartare. Suddenly my mouth went numb, my lips burned, and my skin had a vague feeling of sunburn all over my face, felt slightly harder to breathe, ears began screaming. I thought maybe it had been the onion that I added. Nope, it happened the next day with just meat.
7.) Fell down the histamine rabbit hole and realize that I have a majority of not just histamine intolerance but the symptoms of mast cell activation syndrome. I don't currently go anaphylactic but I ate a fig yesterday being like oh I ate those before and they weren't a problem and I did have a very hard time breathing and ended up taking a couple Claritin.
8.) At this point, the only thing that I can currently eat over the last few days without having a pretty bad reaction is raw milk, egg yolks, mashed potatoes/butter. I'm slowly trying to figure out what other low histamine foods I can eat. I do have some freshly frozen organs and since we butcher our own animals they were literally frozen within hours of killing so should be pretty low in histamine theoretically. Especially the pork organs as it seems pork already has lower histamines?
So I feel like what happened is this problem actually presented itself when I had my first blood sugar crashes during the spring and my system has just been steadily building histamine since.
Just to say I've never had allergies in my life. I could be around the worst pollen or any animal and eat anything and it just didn't bug me.
Now it seems like anything/everything external and internal is creating a reaction.
I know that B vitamins and copper are pretty vital in helping us remove histamines, correct?
I'm also working with vitamin C from camucamu because I'm pretty sure that orange juice would kill me right now with how high in histamines it is.
I have an appointment on October 12th that took me 4 months to get with an endocrinologist. I do believe they also deal with mast cell issues. So what labs would you ask him to draw if this was you??
Anyone have sudden experience with this?
Got any great links I should read?
I know from what I've read on here, people don't think that histamine issues can be resolved, but I wonder if that's different for somebody who suddenly developed them versus a lifelong issue with them?
I'm all ears folk because at this point if I don't figure something out, I'm going to get brave and try very small amounts of MMS because it seems like I might need to eat food to continue living