hello
Up until I was 30 I believed I was healthy, looking back I wasn't. I developed joint pain and my gp prescribed me diclofenic. later after I peed blood, I was diagnosed with Kidney Cancer renal cell cancer.
I had my right kidney and adrenal gland removed and was told "we got it all" "go live your life". I asked if I could make any changes to my diet or lifestyle and the resounding answer was no. 4 years later I was told disease had returned. A private professor in oncology, working for a solicitor looked at all my previous 4 years worth of CT scans. Diesease had returned 3 months after I'd had my kidney removed, it was there quietly growing for 4 years before being spotted. I had failed surgery to remove the recurrence, 3 months later it was visible on CT scan. I was offered immunotherapy which I accepted, it seemed the best available option. Fortunately after just one scan, all disease was resolved. I was back to showing no evidence of disease. 18 months on and its made another appearance.
Over the last 2 years I have read several books, taken several off labels & supplements, changed my diet.
I have been offered further treatment which doesn't cure, but if i am lucky it can buy me some time. I have declined because immunotherapy did more harm than it did good. I was left with colitis, pneumonitis, uveitis & myositis. My body is full of inflammation which steroids haven't managed to treat.
I know disease will progress but for now I have my mobility and I am leading a relatively 'normal life'. I would like to extend my life for aslong as possible. Any advice would be greatly appreciated.
Up until I was 30 I believed I was healthy, looking back I wasn't. I developed joint pain and my gp prescribed me diclofenic. later after I peed blood, I was diagnosed with Kidney Cancer renal cell cancer.
I had my right kidney and adrenal gland removed and was told "we got it all" "go live your life". I asked if I could make any changes to my diet or lifestyle and the resounding answer was no. 4 years later I was told disease had returned. A private professor in oncology, working for a solicitor looked at all my previous 4 years worth of CT scans. Diesease had returned 3 months after I'd had my kidney removed, it was there quietly growing for 4 years before being spotted. I had failed surgery to remove the recurrence, 3 months later it was visible on CT scan. I was offered immunotherapy which I accepted, it seemed the best available option. Fortunately after just one scan, all disease was resolved. I was back to showing no evidence of disease. 18 months on and its made another appearance.
Over the last 2 years I have read several books, taken several off labels & supplements, changed my diet.
I have been offered further treatment which doesn't cure, but if i am lucky it can buy me some time. I have declined because immunotherapy did more harm than it did good. I was left with colitis, pneumonitis, uveitis & myositis. My body is full of inflammation which steroids haven't managed to treat.
I know disease will progress but for now I have my mobility and I am leading a relatively 'normal life'. I would like to extend my life for aslong as possible. Any advice would be greatly appreciated.