Pyroluria

Peata

Member
Joined
Jun 12, 2013
Messages
3,402
I saw this mentioned on the RP FB pg and it got me researching. I have had many of the symptoms all my life. Maybe this has something to do with why I responded well to zinc, though it ended up not being a cure-all of course. But when I was taking B6, I saw many symptoms disappearing after a week or two. Then I started worrying about nerve damage so I dropped back my B6 and stopped completely, and the symptoms came back.

Anyone else have this or suspect it?
 

kiran

Member
Joined
Aug 9, 2012
Messages
1,054
Well, B6 (as part of a b-complex) used to help me at one point. But now it doesn't seem to make much of a difference, so I've almost stopped it. Also, it has more than 10mg of B6/P5P which I believe RP discourages since it can increase serotonin production.
 

Peata

Member
Thread starter
Joined
Jun 12, 2013
Messages
3,402
For whatever reason I never saw a lot of improvement when I used B complex, but I still take a small amount of all the Bs to cover myself. When I was taking a higher dose of B6, I saw improvement but was only on that for about 3-1/2 weeks. I didn't know anything at the time about pyroluria, I was just using the B6 to lower prolactin, improve C02, hormone balance. I just ordered the P5P version so I can have less worry of nerve damage.
 

ratlike

New Member
Joined
Aug 22, 2014
Messages
1
Had a Question:

I have all the symptoms of pyroluria but do not have a b6 deficiency and when I did the zinc taste test it was bitter in my mouth 1 second after i drank it. I wanted to ask everyone if I should still get tested or there is no need since I am not deficient in either zinc or b6?

Thanks in advance.

Adeel
 
Similar threads
Thread starter Title Forum Replies Date
Luann Pyroluria, PLEASE Help Ask For Help or Advice 19
JohnBonham Does Pyroluria Actually Exist? Zinc/b6 Health 8
B Pyroluria Mind, Sleep, Stress 27

Similar threads

Top