PFS For 10 Years, CPPS Won't Go Away

[Andreas Persson]

Hey all,

I have had PFS for 10 years now, my parents started me on propecia when I was 17. I quit some months before turning 19.

I trusted my doctor and parents, and was not informed of any permanent effects. This was 2006-2007, around that time.

I have severe pelvic pain that I got soon after quitting propecia and still have it now at 27. Nothing seem to help and it gets even more painful after ejaculation and sexual activity.

Any tips on how to relieve my pelvic pain? In my case I think it's key in my recovery.

I tried juice fasting for 3 days but the pain got worse? I have also tried water fasting for 7 days and the pain got really bad. I've also tried nofap but the pain builds up around day 5 and I can go 14 days of nofap, with more pain but mental temporary improvements until I ejaculate(sry tmi)

I have also tried yoga and acupuncture with little success. My **** is much smaller now than it was when I was 17 and smaller erect as well. The pelvic pain and that my penis is constantly retracting like it's cold and small erections + fat makes my avoid women. I can still build muscle and am very tall(2 meters), so even when I am this fat I get some female attention. I don't look as fat as I am.

I am severely overweight/obese but it's strange when I overeat the pain temporarily goes away. Lyrica can remove the pain for a while but it's also a shitty drug. Weed does very little. I have tried prostate massage many times, which helps while doing it but nothing permanent. Same with hot baths, it helps when I am bathing but when I get up the pain comes back.

I have also low t and tried trt but I didn't feel much even at high dosage. I have done a PCT tapering with nolvadex at the end and my test is back a little higher than when I was young after I had crashed, but still very low. I stopped trt a in march 2017, was on different protocols for 2-3 years. Didn't feel much difference, I got eye floaters from clomid thou.

I have tried alot more over the years, different herbs etc, but nothing really helped my condition. I think that because I was so young when I was prescribed propecia made my PFS "stronger" because my body at 17 still had hormonal balancing to do so to speak. Before propecia I had insane libido, big **** and a lust for life. All gone. For stupid hair. And here I am 10 years later in my late twenties still wondering what to do. And what the hell happened.

I have tried different things over the years, clomid, letro and testo-e injection and testogel. Didn't do much.

I also tried the paleo diet for 2-3 months but I didn't feel any difference, maybe because of the stored fat. I lost some fat thou but gained it back after the diet.

Maybe TMI, but do you have any suggestions for me? Should I just try CDNUTS protocol again? The pain is the main problem for me, it's keeping me unemployed and I can't study or focus with this much pain. Can I take a drug such as Lyrica during fasting or is that stupid/dangerous? I want to follow CDNUTS's protocol but the pain is so present and severe that I cannot do much at all.

Lifting weights seem to make the pelvic pain worse. I feel like I have some kind of nerve damage but no doctor(mostly idiots in Sweden) don't take that seriously. Doctors are clueless.

I have more symptoms like brain fog but my chronic pelvis pain is hindering me to even try a protocol fully - hard to explain what it's like having severe pain 24/7 for 10 years trying and reading on wtf to do. My depression is almost gone, that is the only symptom that almost gone away. I am now more angry and vengeful now. That ******* doctor. And Merck.

I would gladly receive some tips or approach or help from this forum.

 

[goodandevil]

Hey all,

I have had PFS for 10 years now, my parents started me on propecia when I was 17. I quit some months before turning 19.

I trusted my doctor and parents, and was not informed of any permanent effects. This was 2006-2007, around that time.

I have severe pelvic pain that I got soon after quitting propecia and still have it now at 27. Nothing seem to help and it gets even more painful after ejaculation and sexual activity.

Any tips on how to relieve my pelvic pain? In my case I think it's key in my recovery.

I tried juice fasting for 3 days but the pain got worse? I have also tried water fasting for 7 days and the pain got really bad. I've also tried nofap but the pain builds up around day 5 and I can go 14 days of nofap, with more pain but mental temporary improvements until I ejaculate(sry tmi)

I have also tried yoga and acupuncture with little success. My **** is much smaller now than it was when I was 17 and smaller erect as well. The pelvic pain and that my penis is constantly retracting like it's cold and small erections + fat makes my avoid women. I can still build muscle and am very tall(2 meters), so even when I am this fat I get some female attention. I don't look as fat as I am.

I am severely overweight/obese but it's strange when I overeat the pain temporarily goes away. Lyrica can remove the pain for a while but it's also a shitty drug. Weed does very little. I have tried prostate massage many times, which helps while doing it but nothing permanent. Same with hot baths, it helps when I am bathing but when I get up the pain comes back.

I have also low t and tried trt but I didn't feel much even at high dosage. I have done a PCT tapering with nolvadex at the end and my test is back a little higher than when I was young after I had crashed, but still very low. I stopped trt a in march 2017, was on different protocols for 2-3 years. Didn't feel much difference, I got eye floaters from clomid thou.

I have tried alot more over the years, different herbs etc, but nothing really helped my condition. I think that because I was so young when I was prescribed propecia made my PFS "stronger" because my body at 17 still had hormonal balancing to do so to speak. Before propecia I had insane libido, big **** and a lust for life. All gone. For stupid hair. And here I am 10 years later in my late twenties still wondering what to do. And what the hell happened.

I have tried different things over the years, clomid, letro and testo-e injection and testogel. Didn't do much.

I also tried the paleo diet for 2-3 months but I didn't feel any difference, maybe because of the stored fat. I lost some fat thou but gained it back after the diet.

Maybe TMI, but do you have any suggestions for me? Should I just try CDNUTS protocol again? The pain is the main problem for me, it's keeping me unemployed and I can't study or focus with this much pain. Can I take a drug such as Lyrica during fasting or is that stupid/dangerous? I want to follow CDNUTS's protocol but the pain is so present and severe that I cannot do much at all.

Lifting weights seem to make the pelvic pain worse. I feel like I have some kind of nerve damage but no doctor(mostly idiots in Sweden) don't take that seriously. Doctors are clueless.

I have more symptoms like brain fog but my chronic pelvis pain is hindering me to even try a protocol fully - hard to explain what it's like having severe pain 24/7 for 10 years trying and reading on wtf to do. My depression is almost gone, that is the only symptom that almost gone away. I am now more angry and vengeful now. That ******* doctor. And Merck.

I would gladly receive some tips or approach or help from this forum.

I believe you have to rebuild that muscle, as well as address thyroid. Pregnenolone and dhea as well. Glute bridges, squats, walking up stairs with weights, flutter kicks, alojg with adequate protein, pregnenolone, dhea, thyroid. What kijd of lifts exercises/lifts do you do?

 

[mujuro]

Can you explain in detail where the pain is, where it starts and ends, the areas it covers, what it feels like (tingling, burning, zapping), and what exercises make it worse. Sometimes people develop muscular dysfunction so severe and complex that they live for years with it because no one knows how to help or no one takes time helping them. In 20% of the population the sciatic nerve runs through the pirifomis. What few people are told is that the pudendal nerve sits adjacent to the piriformis as well, sometimes so close that minor tension in a dysfunctional piriformis will cause sensory or neuropathic changes in the penis, scrotum, perineum and anus. A dysfunction in piriformis will inexorably create problems in the deep obturator internus, which also sits adjacent to pudendal nerve.

 

[sladerunner69]

We have made some major progress in threads like "thoughts on pfs" etc.... we believe it is primarily nuerological damage in the CNS and brain that is the problem. you can address it with certain chemicals and eating a pro metabolic diet. I am almost compeltely recoverred and I ahd a horrible crash years ago, there are other success stories here as well.

 

[Richiebogie]

It doesn't matter what your symptoms are, if you eat the right foods and avoid the wrong foods your problems should clear up in time.

Dr Max Gerson had bad migraines and after experimenting found a restrictive diet that cleared them up. He then tried the diet on his patients who had migraines and got good results. However he found that it cleared up all sorts of other problems these people were having.

You can use his diet or Ray Peat's diet suggestions as a template but I would use it with a view to improve on it for yourself.

Try eating large quantities of a small range of safe foods and see how you feel after a few days or weeks. Then add in foods you have been craving and remove foods you think aren't working for you to test them. eg. Start with sweet potatoes, butter, cheese, oysters, mangos, parsley, chicken.

 

[Andreas Persson]

It doesn't matter what your symptoms are, if you eat the right foods and avoid the wrong foods your problems should clear up in time.

Dr Max Gerson had bad migraines and after experimenting found a restrictive diet that cleared them up. He then tried the diet on his patients who had migraines and got good results. However he found that it cleared up all sorts of other problems these people were having.

You can use his diet or Ray Peat's diet suggestions as a template but I would use it with a view to improve on it for yourself.

Try eating large quantities of a small range of safe foods and see how you feel after a few days or weeks. Then add in foods you have been craving and remove foods you think aren't working for you to test them. eg. Start with sweet potatoes, butter, cheese, oysters, mangos, parsley, chicken.

I follow CDnuts protocol(a recovered pfs sufferer) now and am gonna try paleo again. If that doesn't work I will use Ray Peat's diet.

Can you explain in detail where the pain is, where it starts and ends, the areas it covers, what it feels like (tingling, burning, zapping), and what exercises make it worse. Sometimes people develop muscular dysfunction so severe and complex that they live for years with it because no one knows how to help or no one takes time helping them. In 20% of the population the sciatic nerve runs through the pirifomis. What few people are told is that the pudendal nerve sits adjacent to the piriformis as well, sometimes so close that minor tension in a dysfunctional piriformis will cause sensory or neuropathic changes in the penis, scrotum, perineum and anus. A dysfunction in piriformis will inexorably create problems in the deep obturator internus, which also sits adjacent to pudendal nerve.

It's a dull but heavy ache usually and often begins in the anus area. In the early stages(first year of propecia) I got zaps of incredible pain that lasted less than a second. The pain went 100% chronic after a year or so I think. The PFS foundation found abnormalities in the pudendal nerve among PFS sufferers. Titled Neuroactive Steroid Levels and Psychiatric and Andrological Features in Post-Finasteride Patients, the three-year study also uncovered evidence of neuropathy of the pudendal nerve among those with severe erectile dysfunction. I don't have severe ED, but I have penile shrinkage and severe post ejaculatory pain, the dull pain often increases after ejaculation. But the pain also increases If I go nofap for more then 5-6 days.

I think the first pain symptom besides the random stinging pain was pain after ejaculation, that pain is chronic now. I also remember that during severe pain my muscles would not relax and I couldn't poop, couldn't push poop out. I have had burning pain while I peed maybe 5 times in 10 years. The pain is sometimes more at the front than the back, but the chronic pain sits closer to the anus I think. Sometimes the whole groin area just hurts, no specific point. Heavy ache.

I haven't found anyone with your knowledge where I live, physiotherapist that knows their ***t is few and far between here. Do you have any tips for me? I am obese after all these years so I'm trying Lyrica to get some handle on the pain, I have tried different prostate massages and stretches and such, no lasting effect.

We have made some major progress in threads like "thoughts on pfs" etc.... we believe it is primarily nuerological damage in the CNS and brain that is the problem. you can address it with certain chemicals and eating a pro metabolic diet. I am almost compeltely recoverred and I ahd a horrible crash years ago, there are other success stories here as well.

That's interesting because I had some sort of epilepsy when I was young that I "outgrew", so maybe that's part of the reason to why I developed PFS.

 

[Richiebogie]

Some of Ray Peat's dietary recommendations are:

1) eat fruit not starch
2) consume dairy
3) drink some coffee
4) avoid seeds, beans and grains and their oils and other byproducts
5) eat coconut oil
6) eat some gelatine, liver, oysters and mushrooms
7) do not eat too much high iron foods like beef and lamb
8) root vegetables can be ok but do not eat too many other vegetables

These suggestions are about retaining a youthful metabolism and hormone profile.

You may be able to combine some of them with your paleo trial.

 

[outcast1979]

We have made some major progress in threads like "thoughts on pfs" etc.... we believe it is primarily nuerological damage in the CNS and brain that is the problem. you can address it with certain chemicals and eating a pro metabolic diet. I am almost compeltely recoverred and I ahd a horrible crash years ago, there are other success stories here as well.

What chemical do you suggest,thank you.

 

[sladerunner69]

What chemical do you suggest,thank you.

Androsterone, thyroid (t3 during the day and t4/t3 combo in the evening), 5a-dhp have all helped me significantly. Taking extra DHEA, pregnenelone and progesterone seems to help quite a bit as well. I drink a lot of coffee too, but only with food, and it gives me better energy and mood.

I recently started HCG last month and have felt a lot more energetic in general.

As for diet, some PFS guys are very much low-carbers and say this is the only way they can feel okay. Personally I eat a lot of carbs and go low fat. To each his own.

 

[edoos]

We have made some major progress in threads like "thoughts on pfs" etc.... we believe it is primarily nuerological damage in the CNS and brain that is the problem. you can address it with certain chemicals and eating a pro metabolic diet. I am almost compeltely recoverred and I ahd a horrible crash years ago, there are other success stories here as well.

Hi Sladerunner69, I read that you recover from PFS. I still got bad mental sides effect do you have an idea of what I can try to feel better? Lot of anxiety mainly and inability to cope with external stressor.

 

[sladerunner69]

Hi Sladerunner69, I read that you recover from PFS. I still got bad mental sides effect do you have an idea of what I can try to feel better? Lot of anxiety mainly and inability to cope with external stressor.

Yes anxiety was probably my worst symptom for years, it was very debilitating. The best thing I ever did for anxiety was do a cycle of R-andro, which is basically a high dosage of androsterone, which converts to DHT. It completely got rid of my anxiety for good, but did not do much for my mental state. For a clearer, more focussed mental state the best things have been 5a-dhp and caffiene. The best thing to help with energy was taking thyroid hormone and eating a ray peat diet.

Recently Ive been using HCG and while it doesnt have any immediate improvements it has helped me to recover and slowly improve my baseline in all areas.

 

[richofden]

Hey all,

I have had PFS for 10 years now, my parents started me on propecia when I was 17. I quit some months before turning 19.

I trusted my doctor and parents, and was not informed of any permanent effects. This was 2006-2007, around that time.

I have severe pelvic pain that I got soon after quitting propecia and still have it now at 27. Nothing seem to help and it gets even more painful after ejaculation and sexual activity.

Any tips on how to relieve my pelvic pain? In my case I think it's key in my recovery.

I tried juice fasting for 3 days but the pain got worse? I have also tried water fasting for 7 days and the pain got really bad. I've also tried nofap but the pain builds up around day 5 and I can go 14 days of nofap, with more pain but mental temporary improvements until I ejaculate(sry tmi)

I have also tried yoga and acupuncture with little success. My **** is much smaller now than it was when I was 17 and smaller erect as well. The pelvic pain and that my penis is constantly retracting like it's cold and small erections + fat makes my avoid women. I can still build muscle and am very tall(2 meters), so even when I am this fat I get some female attention. I don't look as fat as I am.

I am severely overweight/obese but it's strange when I overeat the pain temporarily goes away. Lyrica can remove the pain for a while but it's also a shitty drug. Weed does very little. I have tried prostate massage many times, which helps while doing it but nothing permanent. Same with hot baths, it helps when I am bathing but when I get up the pain comes back.

I have also low t and tried trt but I didn't feel much even at high dosage. I have done a PCT tapering with nolvadex at the end and my test is back a little higher than when I was young after I had crashed, but still very low. I stopped trt a in march 2017, was on different protocols for 2-3 years. Didn't feel much difference, I got eye floaters from clomid thou.

I have tried alot more over the years, different herbs etc, but nothing really helped my condition. I think that because I was so young when I was prescribed propecia made my PFS "stronger" because my body at 17 still had hormonal balancing to do so to speak. Before propecia I had insane libido, big **** and a lust for life. All gone. For stupid hair. And here I am 10 years later in my late twenties still wondering what to do. And what the hell happened.

I have tried different things over the years, clomid, letro and testo-e injection and testogel. Didn't do much.

I also tried the paleo diet for 2-3 months but I didn't feel any difference, maybe because of the stored fat. I lost some fat thou but gained it back after the diet.

Maybe TMI, but do you have any suggestions for me? Should I just try CDNUTS protocol again? The pain is the main problem for me, it's keeping me unemployed and I can't study or focus with this much pain. Can I take a drug such as Lyrica during fasting or is that stupid/dangerous? I want to follow CDNUTS's protocol but the pain is so present and severe that I cannot do much at all.

Lifting weights seem to make the pelvic pain worse. I feel like I have some kind of nerve damage but no doctor(mostly idiots in Sweden) don't take that seriously. Doctors are clueless.

I have more symptoms like brain fog but my chronic pelvis pain is hindering me to even try a protocol fully - hard to explain what it's like having severe pain 24/7 for 10 years trying and reading on wtf to do. My depression is almost gone, that is the only symptom that almost gone away. I am now more angry and vengeful now. That ******* doctor. And Merck.

I would gladly receive some tips or approach or help from this forum.

This helps me Electrical Stimulation for Pelvic Pain