National Medical Data opt-out UK

OP
P

Peatness

Guest
Sadly, it looks like even if you opt out under the coronavirus rule your data can be used. Basically they are going to use your medical records whether you like it or not.

UK Column brought this to our attention, starts are 11mins in the video

UK Column News - 26th May 2021 | UKColumn
 
OP
P

Peatness

Guest
Here are the forms:- one for your GP and one for NHS data
 

Attachments

  • Make_and_manage_your_choice opt out PDF_224kb.pdf
    224.9 KB · Views: 11
  • Type+1+Opt-out+form.docx
    37.3 KB · Views: 11

Lizb

Member
Joined
May 27, 2017
Messages
731
Location
United Kingdom
I saw that some GP practices are refusing to allow the data to be shared. I guess they won't get away with that for long.
 

AdoTintor

Member
Joined
Mar 6, 2020
Messages
405
just printed and filled out the GP form, about to do the online one too (which is for slightly different data). I wonder what else I should be doing in the UK to protect myself, I could easily have missed this, and the deadline is imminent.
 

Sefton10

Member
Joined
Oct 19, 2019
Messages
1,593
Yes, you can opt out of the NHS data online. However, to opt out of you GP sharing system you have to complete type 1 form and submit to GP.
Ahh, gotcha.
 
OP
P

Peatness

Guest
Due to uncertain times it may be worth opting out of this too. You will need to access the 'Health Information Exchange' scheme for your area in the UK.


Please Note that this is different to the 2 opt out options mentioned at the begining of this thread
 
Last edited by a moderator:

AdoTintor

Member
Joined
Mar 6, 2020
Messages
405
Due to uncertain times it may be worth opting out of this too


This is the opt out page


cheers - its looks local to this area around Hampshire right? So not nationwide (yet)

"CHIE contains health and social care information from over 160 GP surgeries in and around Hampshire and the Isle of Wight"
 
OP
P

Peatness

Guest
cheers - its looks local to this area around Hampshire right? So not nationwide (yet)

"CHIE contains health and social care information from over 160 GP surgeries in and around Hampshire and the Isle of Wight"
It is nationwide but you may have to contact your gp to find out how to opt out in your area. If you search 'Health Information Exchange' for your area it may come up
 
OP
P

Peatness

Guest

Minutes show that ideas included:

The creation of a new category of what were described as “special forces nurses” to “reward’’ NHS staff who helped speed up testing and trials of new drugs in hospitals. The minutes state: “This would help the industry move away from the current culture/fear of scapegoating if anything goes wrong.”

Removing barriers preventing startup companies from accessing NHS data. Such firms have traditionally been excluded on account of the risks associated with them.

“Data trusts” – third parties independent of the NHS and industry – that would hold and allow startup companies access to NHS data, as a way of overcoming concerns about confidentiality and the use of private information.

A data equivalent of the organ donor scheme, which patients could opt in to, with the result that driving licences might read “data donor” as well as “organ donor”.
The minutes described it as an “attractive idea” but added that a Tory MP and taskforce member, George Freeman, had previously championed this and could not find a form the then health secretary, Jeremy Hunt, was comfortable with.

Easing the level of inspection of innovative cell therapy – the introduction of healthy cells into a body to destroy diseased ones – required by the Human Tissue Authority. Critics have expressed concern about reducing regulation and oversight in a relatively new area where ethically sensitive issues have cropped up.
 
OP
P

Peatness

Guest
 
OP
P

Peatness

Guest
‘Terrorist activity’ concerns trump patient confidentiality, NHS staff told

Health professionals should not let fears about sharing personal data “stand in the way” of reporting patients at risk of ”being groomed into terrorist activity”, new government guidance has stressed.

New guidance has been developed in response to concerns raised by clinicians about information sharing without consent for the purposes of the anti-terror Prevent and Channel programmes.

It stresses that “fears about sharing personal data should not be allowed to stand in the way of the need to safeguard and promote the welfare of children and adults at risk of abuse or exploitation”.

However, despite the need for clarity it describes how the decision for making a referral without someone’s informed consent should be subject to a “case-by-case” basis assessment, which considers whether the informed consent of the individual can be obtained, and if the proposed data sharing is legitimate, necessary, proportionate and lawful.

It said: “This assessment should be based on your professional opinion that there is tangible public interest or best interest considerations involved.”

Read full story (paywalled)

Source: HSJ, 29 September 2022
 

Similar threads

Back
Top Bottom