Lyme Disease

Discussion in 'iLoveSugar' started by iLoveSugar, Oct 22, 2013.

  1. Parisa

    Parisa Member

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    Because of the autoimmune diagnosis, he was able to get IVig which definitely helped boost his immune system. Lyme disease depresses the immune system and on top of that in his first year of illness until we figured out that he had Lyme disease he was treated with prednisone and chemotherapy which did a real number on his immune system.
     
  2. OP
    iLoveSugar

    iLoveSugar Member

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    Did he try full blown Peating and thyroid before going the other routes? Or was this before you really knew/followed RP?
     
  3. Parisa

    Parisa Member

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    This was before I knew about Peat. However, in my husband's case, I don't think Peating would have been enough, it might have helped but it would have been too little too late for him. My husband's case was very serious though and we didn't have a lot of time to turn things around. He was very, very ill when we started the IV antibiotics and if hadn't started them in combination with the IVig he wouldn't be here today.
     
  4. OP
    iLoveSugar

    iLoveSugar Member

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    So him nearly dying was attributed all to lyme? Or lyme in conjunction with other things? Incredible...
     
  5. Parisa

    Parisa Member

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    His traditional doctors said he had an autoimmune condition called dermatomyositis with pulmonary fibrosis. The treatment protocol for that is prednisone and chemotherapy. They hope to maybe put you in a type of remission while destroying your immune system at the same time.

    When we treated the Lyme disease and co-infection babesiosis, he recovered. At his most ill, he weighed 135 lbs down from a healthy 175 and he had a 50% lung capacity. His pulmonary fibrosis was supposedly irreversible. We not only stopped the progression of the fibrosis but reversed it. In addition, he lost a lot of muscle in his hip girdle and upper shoulder/neck area. I won't go into the amount of pain, he had, suffice to say that he had every type of pain in almost every part of his body. It hurt him to touch anything and to also be touched. The fact that he survived is a testament to his inner strength as many people would have given up and slipped away. Today my husband works a full day and is able to run again. The only pain left is some burning in his feet.
     
  6. OP
    iLoveSugar

    iLoveSugar Member

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    I'm completely happy for you, and disgusted for myself. I DREAD having to do iv therapy or throw multiple antibiotics at my body. 1) I tolerate absolutely nothing well and 2) I simply don't have the out of pocket money.
     
  7. OP
    iLoveSugar

    iLoveSugar Member

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    Anyone else with Lyme experience?
     
  8. Brothers keeper

    Brothers keeper Member

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    Read this: very encouraginghttp://www.als-cure.com/ALS.pdf
     
  9. Brothers keeper

    Brothers keeper Member

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    Why? What politics?
     
  10. Peater Piper

    Peater Piper Member

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    I don't know about other countries, but in the U.S., standard treatment for Lyme is Doxycycline for 2-4 weeks, with the belief that it completely eradicates the infection, and any further treatment is unnecessary and potentially harmful. Doctors that choose to deviate from these guidelines risk losing their licenses, and insurance companies usually won't cover the additional treatments.
     
  11. Brothers keeper

    Brothers keeper Member

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    That helps! Thank you!!
     
  12. davidgraham

    davidgraham New Member

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    I know this is old post but how did your husband heal lyme?
     
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