Lyme Disease

[Parisa]

Because of the autoimmune diagnosis, he was able to get IVig which definitely helped boost his immune system. Lyme disease depresses the immune system and on top of that in his first year of illness until we figured out that he had Lyme disease he was treated with prednisone and chemotherapy which did a real number on his immune system.

 

[iLoveSugar]

Because of the autoimmune diagnosis, he was able to get IVig which definitely helped boost his immune system. Lyme disease depresses the immune system and on top of that in his first year of illness until we figured out that he had Lyme disease he was treated with prednisone and chemotherapy which did a real number on his immune system.

Did he try full blown Peating and thyroid before going the other routes? Or was this before you really knew/followed RP?

 

[Parisa]

This was before I knew about Peat. However, in my husband's case, I don't think Peating would have been enough, it might have helped but it would have been too little too late for him. My husband's case was very serious though and we didn't have a lot of time to turn things around. He was very, very ill when we started the IV antibiotics and if hadn't started them in combination with the IVig he wouldn't be here today.

 

[iLoveSugar]

So him nearly dying was attributed all to lyme? Or lyme in conjunction with other things? Incredible...

 

[Parisa]

His traditional doctors said he had an autoimmune condition called dermatomyositis with pulmonary fibrosis. The treatment protocol for that is prednisone and chemotherapy. They hope to maybe put you in a type of remission while destroying your immune system at the same time.

When we treated the Lyme disease and co-infection babesiosis, he recovered. At his most ill, he weighed 135 lbs down from a healthy 175 and he had a 50% lung capacity. His pulmonary fibrosis was supposedly irreversible. We not only stopped the progression of the fibrosis but reversed it. In addition, he lost a lot of muscle in his hip girdle and upper shoulder/neck area. I won't go into the amount of pain, he had, suffice to say that he had every type of pain in almost every part of his body. It hurt him to touch anything and to also be touched. The fact that he survived is a testament to his inner strength as many people would have given up and slipped away. Today my husband works a full day and is able to run again. The only pain left is some burning in his feet.

 

[iLoveSugar]

His traditional doctors said he had an autoimmune condition called dermatomyositis with pulmonary fibrosis. The treatment protocol for that is prednisone and chemotherapy. They hope to maybe put you in a type of remission while destroying your immune system at the same time.

When we treated the Lyme disease and co-infection babesiosis, he recovered. At his most ill, he weighed 135 lbs down from a healthy 175 and he had a 50% lung capacity. His pulmonary fibrosis was supposedly irreversible. We not only stopped the progression of the fibrosis but reversed it. In addition, he lost a lot of muscle in his hip girdle and upper shoulder/neck area. I won't go into the amount of pain, he had, suffice to say that he had every type of pain in almost every part of his body. It hurt him to touch anything and to also be touched. The fact that he survived is a testament to his inner strength as many people would have given up and slipped away. Today my husband works a full day and is able to run again. The only pain left is some burning in his feet.

I'm completely happy for you, and disgusted for myself. I DREAD having to do iv therapy or throw multiple antibiotics at my body. 1) I tolerate absolutely nothing well and 2) I simply don't have the out of pocket money.

 

[iLoveSugar]

Anyone else with Lyme experience?

 

[Brothers keeper]

I'm 14 years in. I tested negative for all co-infections, but positive for Lyme. Currently I am googling "ALS" all night due to uncontrollable left wrist twitching/hand weakness.

So basically, I am screwed if it's late stage?

Read this: very encouraginghttp://www.als-cure.com/ALS.pdf

 

[Brothers keeper]

Most of the Lyme specialists don't accept insurance. If they do, the insurance companies go after them and they lose their licenses. We went to a Lyme specialist and paid his fees out of pocket. Our primary was sympathetic and we would bring the pharmacy scripts to him and he and his nurse did their best to get them covered. A lot of RX weren't covered or if they were some were only covered for a short period and then we had to pay out of pocket. That's the unfortunate reality of the politics of Lyme disease. The insurance company was willing to spend tens of thousands of dollars for chemotherapy treatments to treat my husband's disease as an autoimmune condition but balked at treating it similarly with antibiotics.

Why? What politics?

 

[Peater Piper]

Why? What politics?

I don't know about other countries, but in the U.S., standard treatment for Lyme is Doxycycline for 2-4 weeks, with the belief that it completely eradicates the infection, and any further treatment is unnecessary and potentially harmful. Doctors that choose to deviate from these guidelines risk losing their licenses, and insurance companies usually won't cover the additional treatments.

 

[Brothers keeper]

I don't know about other countries, but in the U.S., standard treatment for Lyme is Doxycycline for 2-4 weeks, with the belief that it completely eradicates the infection, and any further treatment is unnecessary and potentially harmful. Doctors that choose to deviate from these guidelines risk losing their licenses, and insurance companies usually won't cover the additional treatments.

That helps! Thank you!!

 

[davidgraham]

His traditional doctors said he had an autoimmune condition called dermatomyositis with pulmonary fibrosis. The treatment protocol for that is prednisone and chemotherapy. They hope to maybe put you in a type of remission while destroying your immune system at the same time.

When we treated the Lyme disease and co-infection babesiosis, he recovered. At his most ill, he weighed 135 lbs down from a healthy 175 and he had a 50% lung capacity. His pulmonary fibrosis was supposedly irreversible. We not only stopped the progression of the fibrosis but reversed it. In addition, he lost a lot of muscle in his hip girdle and upper shoulder/neck area. I won't go into the amount of pain, he had, suffice to say that he had every type of pain in almost every part of his body. It hurt him to touch anything and to also be touched. The fact that he survived is a testament to his inner strength as many people would have given up and slipped away. Today my husband works a full day and is able to run again. The only pain left is some burning in his feet.

I know this is old post but how did your husband heal lyme?