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Lipedema Aka Lipoedema On Legs

Discussion in 'Weight' started by Greenie, May 26, 2016.

  1. Birdie

    Birdie Member

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    Yes, that's right. That's how it works.
    Apparently, if you're too high estrogen or something, taking food (carbs) doesn't curb the thing.

    That's why I mentioned my response.
    As I've said somewhere, 75mg niacin amide, with food is the most I tolerate.

    This fits in with the edema, so makes it of interest here.
     
  2. tara

    tara Member

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    50-75mg at a dose may well be enough to get a lot of the benefit anyway.
    I don't take more than 100mg at a time.
     
  3. Birdie

    Birdie Member

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    Don't know if you're still here @Greenie, but I have an update on my niacinamide dose.
    Yesterday and today I tried taking my 250 mg capsule in the late afternoon with sugar, starch and cheese.
    No bad reaction.

    Hope this will contribute to a good estrogen lowering and anti-inflammatory effect.

    Here is that Peat article on edema:
    When energy fails: Edema, heart failure, hypertension, sarcopenia, etc.
     
  4. Birdie

    Birdie Member

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  5. OP
    Greenie

    Greenie Member

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    Yes hi! I'm still here. Paying attention to this thread daily :). I had success with 2 small pinches of niacinimide with meals today. No bad reactions. Edema is still pretty bad though. It had cleared up some (the excess edema that accompanies the already fatty tissue) after a month of topical Mitolipn but then returned with my latest period and has yet to go back down in the past 11 days, even with the continuation of mitolipin. It's strange how some months, my edema is worse than others. It's gone down before for brief periods of time. Haven't put my finger on what triggers it to swell again
     
  6. Birdie

    Birdie Member

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    Pretty interesting reports on various edema remedies at Earthclinic.

    This morning I measured my ankles and the fattest part of my calves.
    Less edema then, but by now, it's looking more "muscular" as things puff up.

    In my searches I see 500mg of niacin amide 3X a day getting good results.
    That's a lot.

    My calves broke out in a rash at the front yesterday. I read that it's from the dmso drying out the skin.
    So, skipped dams yesterday. Spellcheck I'm ignoring from now on.
    Am using it just on knees for now.
     
  7. Birdie

    Birdie Member

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    @Greenie I am trying MSM lotion on legs. Also have capsules on order.

    Plan to take 1000mg MSM in the morning to start. And continue the lotion for a month or 6 weeks trial. And continue to use niacin amide as tolerated.

    Hope you figure out why yours comes and goes.
     
  8. OP
    Greenie

    Greenie Member

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    More taurine seems to help reduce my edema some. But not always. Right now, I'm dealing with some constipation.. Ugh

    Msm lotion, I'll have to check that out @Birdie
     
  9. Birdie

    Birdie Member

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    I am back to having rapid heartbeat with niacinamide @Greenie. Can't imagine ever tolerating the 500mg three times a day that was recommended for edema....

    Am also taking a 1000mg capsule of MSM with food.
     
  10. tara

    tara Member

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    IIUC, MSM and DMSO can both make some other supplements much more effective, so that one may need less to get positive benefits, but also less before hitting unwanted side-effects?
     
  11. OP
    Greenie

    Greenie Member

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    checking in everyone.
    I've decided to go forward with WAL liposuction. 2 surgeries are scheduled in 12 days. They'll do my lower legs and arms (found fibrotic fatty tissue there too) on the first surgery and upper legs on the second surgery. I decided to go ahead and do it now before it progresses into stage 2 lipedema. My skin quality is still pretty good while still in stage 1, so i'll have the best recovery the sooner we do it.

    I wonder if just continuing with my regimen would've kept it stalled but honestly things seemed to be reversing since the spring, with increased edema and bulk in those areas. So, here i go. Will be researching the best ways to recover from liposuction- I'm sure Taurine and progesterone are on the list :)