I discovered I was extremely sensitive to MCC (microcrystaline cellulose) several years ago when it was used as the tableting powder for a compounded medication. Symptoms began with light headedness, POTS, daily increasing headache, hair loss, then progressed to gastro issues so severe that I thought I had appendicitis. At the time, I was just about to go to the ER, when I opened up to my FB support group and someone else was having the same symptoms- the other people ongroup, asked what her filler was and it was MCC. I discovered my filler was also MCC. The next day I did not dose, and my symptoms began to fade.
Since then I dutifully watch for MCC - which, sadly, is more and more common.
5 weeks ago I decided to HBOT (hyperbaric Oxygen Treatment). The first session went well (although I needed some help with my initial claustrophobia, so I took what I take to help me sleep). All went well, and that night I slept very well. Two days later I did another "dive" and that night I could not sleep. The pharmacy (who has it on their note to avoid mcc) had switched generics. I didn't seem to have a severe reaction, but my sleep wasn't as good. Then my hair really started to fall out. My vascular system got worse - vs better. And my neuropathy got worse - vs better. These had improved after just my first dive.
I increased everything that usually improves my health and hairloss, but hair continued to fall, and my sleep kept getting worse, veins and nerves. I thought it was possibly a herx reaction to the HBOT.
Then Friday, I had a new generic for a different medication. By now, I'm lucky to be getting 3-4 hours of sleep a night, and again the pharmacy has it noted to avoid MCC, so I took the new generic. Within an hour I was dizzy and my head was spinning and throbbing, and I was flushing and developing a rash. Oh, this was far too familiar. Sure enough MCC was not only the first filler, but the only filler. I then decided to look up the generic that was switched on my other med about 5 weeks ago - MCC was the third filler (less symptoms).
Currently, my health is now worse than prior to starting HBOT (all that $ GONE!).
I believe that MCC is especially detrimental for those of with Ehlers Danlos.
To me mcc feels like it causes the same (or similar) damage as high oxalates - shredding through your tissue, BBB, vascular system, etc. Apparently, these tiny particles even enter the cell.
I have searched and searched for a way to bind, dissolve, remove, whatever... this stuff from my system, but have come up empty. Ideas anyone? Thank you!
Since then I dutifully watch for MCC - which, sadly, is more and more common.
5 weeks ago I decided to HBOT (hyperbaric Oxygen Treatment). The first session went well (although I needed some help with my initial claustrophobia, so I took what I take to help me sleep). All went well, and that night I slept very well. Two days later I did another "dive" and that night I could not sleep. The pharmacy (who has it on their note to avoid mcc) had switched generics. I didn't seem to have a severe reaction, but my sleep wasn't as good. Then my hair really started to fall out. My vascular system got worse - vs better. And my neuropathy got worse - vs better. These had improved after just my first dive.
I increased everything that usually improves my health and hairloss, but hair continued to fall, and my sleep kept getting worse, veins and nerves. I thought it was possibly a herx reaction to the HBOT.
Then Friday, I had a new generic for a different medication. By now, I'm lucky to be getting 3-4 hours of sleep a night, and again the pharmacy has it noted to avoid MCC, so I took the new generic. Within an hour I was dizzy and my head was spinning and throbbing, and I was flushing and developing a rash. Oh, this was far too familiar. Sure enough MCC was not only the first filler, but the only filler. I then decided to look up the generic that was switched on my other med about 5 weeks ago - MCC was the third filler (less symptoms).
Currently, my health is now worse than prior to starting HBOT (all that $ GONE!).
I believe that MCC is especially detrimental for those of with Ehlers Danlos.
To me mcc feels like it causes the same (or similar) damage as high oxalates - shredding through your tissue, BBB, vascular system, etc. Apparently, these tiny particles even enter the cell.
I have searched and searched for a way to bind, dissolve, remove, whatever... this stuff from my system, but have come up empty. Ideas anyone? Thank you!
