Help with Devastating Iatrogenic condition - i need your knowledge

Edind9

Member
Joined
Aug 5, 2019
Messages
35
So, ill try to make it short.
Doctors caused me the most awful disease in the world. Its called "empty nose syndrome" when they burn/cut so much of your turbinates that your nose doesnt heat air and airflow is not laminar so you're left suffocating and in pain w every breath, imagine the cascade effects of it.

I manage it inserting every couple hours new cotton "implants" trying to mimick structure. I already had 3 cartilage implants which, at best, gave very mild improvements, so there's little to do surgically and every surgery gives scar tissue. which is not ideal as the issue here is not only volume but also lost nerves, blood vessels, etc.

so, issue is i always had as a kid systemic sky high prolactin/serotonin/histamine. this would cause ...of course...me to have a perennial clogged nose. add the fact that i genetically have some circulation issues and the game is done...what would doctors do? fix the root cause? no every 2 years they'd burn my turbinates. until there was nothing left basically.

So now through a correct diet/lifestyle/supplements whilst my general health is improving this iatrogenic disease is actually worsening as my irritation/histamine levels drop nothing irritates/swells the remnants of my turbinates.

I would need therefore to actually try perhaps some topical substance that might, in time, regrow the nerves, regrow the lost volume? regrow the organ of the turbinates. consider i always have some little cut inside the nose due to dryness so i think absorption would be 1000%
To be noted:

Anything vasoconstricting makes me extremely sick (androsterone, dht)
Blood thinners (vit E, aspirin) make me sick (in the nose i mean)

Paradoxically, stuff like topical histamine or estrogen makes me feel well but we know the systemic damage of that.


Do i have any option?
I really need all of you guy's help, im seriously considering suicide.
Please let me know if you have any idea or know any brilliant doctor i should talk to

Thank you
 

LizAnn

New Member
Joined
Apr 4, 2021
Messages
2
I am so very sorry. I don’t have any good advice, just to hang in there for a little longer. It is amazing to me that you’ve been able to lower your histamines so much. I’m new to this forum and Ray Peat, and you give me hope for a couple of my kids struggling so much with health issues and allergies. It sounds like you have worked so hard to figure out how to get healthier, that you will also be able to find some help for your condition. Sending hope and prayers and positive vibes to you today.
 

Tim Lundeen

Member
Joined
Feb 19, 2017
Messages
138
You could try L-Histidine at night to balance histamine levels. Check out the comments on amazon for bulksupplement's L-histidine.

Maybe methylene blue at night would help with regrowth, inflammation.
 

S-VV

Member
Joined
Jul 23, 2018
Messages
457
Have you considered humid, high flow air delivered by nasal canula directly into the nostrils? This may give more “stimulation” to the remaining nerves. It would dry the mucosa more, however.
 

S-VV

Member
Joined
Jul 23, 2018
Messages
457
Have you considered humid, high flow air delivered by nasal canula directly into the nostrils? This may give more “stimulation” to the remaining nerves. It would dry the mucosa more, however.
On second thought, i dont think this would work, since stimulation needs to be pulsed only to breating in
 

S-VV

Member
Joined
Jul 23, 2018
Messages
457
Maybe a capsaicin (TRPV1 agonsit) spray could help, since it irritates the mucosa, producing vasodilation and engorging the remaining mucosal tisssue
 

Collden

Member
Joined
Oct 6, 2012
Messages
611
I'm terribly sorry that sounds horrible, the stupid crap doctors are allowed to do...

I just read that some people were trying to treat this with the Buteyko breathing method, have you tried that?
 
Similar threads
Thread starter Title Forum Replies Date
T Please help! Had sex for a while but now cant get and/or maintain an erection after using fluoride toothpaste for the first time in long time Ask For Help or Advice 20
GreekDemiGod Preventive anti-Covid measures for my mother | Help me convince her to skip the vaxx Ask For Help or Advice 65
M Silent reflux - help pls Ask For Help or Advice 2
TheBeard Help! Female friend low in Ferritin Ask For Help or Advice 5
Zsazsa Hormone drugs that reduce androgen levels may help disarm the coronavirus spike protein Scientific Studies 0
Soren Cancer Chemo internal bleeding, help Cancer 3
P Help with Tyromax Thyroid and Hormones 3
Cloudhands Need help interpreting blood panel Ask For Help or Advice 17
Frankdee20 HELP accidentally applied Tyromix Ask For Help or Advice 6
E Looking for help with PFS Ask For Help or Advice 71
youngsinatra Overmethylation - A Day Of Horror - Need Help! Ask For Help or Advice 12
VendettaRed911 Looking for help, lacking motivation, Carnivore Diet 13
B Borderline Hypothyroid, Histamine Intolerance? Leaky Gut? Hydrogen Sulfide SIBO?? Need Help Digestion, Gut Flora 24
S Help for my son Skin 9
Philomath Need help debunking or confirming- Study claims reduction in cognitive performance due to wearing masks, and their increase in CO2. Scientific Studies 27
B Excellent results initially but no longer! Help! Ask For Help or Advice 0
D Dilated pupils and anhedonia. Help! Mental Issues 24
P Help Eliminate Chronic Bloating Digestion 26
F Why does Sildenafil and other PDE5 inhibitors help my sleep? Male Issues 0
D German members please help with this supplement Supplements, Pharmaceutical Drugs 8
Pina Muscle wasting, inflammation, and fibrosis. Please help Ask For Help or Advice 32
Bandooli In need of help - am I hypothyroid? Ask For Help or Advice 0
T Is tapering off 1 mg of valium per week fast if you're really unstable? Please help Ask For Help or Advice 1
J Help for painful digestion Digestion 3
M Pls help me with my diet! Ask For Help or Advice 18
G My high estrogen won't drop. Help Ask For Help or Advice 27
Mito CDC recommends double masks to help protect against COVID-19 Miscellaneous Health Discussions 29
J Need help - huge stress response, worried what to do Supplements, Pharmaceutical Drugs 27
A Help with Weightloss Weight 32
F Help interpreting Thyroid Blood Work. Blood Work, Labs 3
S Help me understand this Ask For Help or Advice 2
M divrticulitis and intestine help Digestion 0
L I am freaking out about levothyroxine. Help Female Issues 4
M New here - Might need a little help Meet & Greet 9
F Severly compromised healt - please help Ask For Help or Advice 11
P Help me Fry my Balls (or not) Ask For Help or Advice 2
S Zinc/Copper related black spot (line) (HELP) Hair & Nails 9
bzmazu The ‘blatant arrogance’ of Zuckerberg and Dorsey: Revolution Populi aims to help a thousand social networks bloom Breaking News 0
B Help Dissolving Testosterone Base Powder Thyroid and Hormones 8
S 10+ Day Period of Poor Sleep Quality but Doing Everything by the Book.. Please Help?! Insomnia, Sleep Issues 10
ecstatichamster ELI5: Help me demolish the claim that covid vaccines are 95% effective Miscellaneous Health Discussions 29
Razvan I need help pls help me guys Ask For Help or Advice 5
Razvan Help with thyroid Thyroid and Hormones 7
A Chronic Insomnia, Diffuse Thinning. Thyroid labs. Any help appreciated! Ask For Help or Advice 3
T Need help for friend who was floxxed by cipro an antibiotic Ask For Help or Advice 9
S Libido - ED - Need some help pls [DHT / Minox? ] Male Issues 112
M Macular Degeneration in young age - pls help Ask For Help or Advice 47
D Any Such Thing As Natural Alternative To Afrin/Flonase >Stuffed Nose - Help Eyes, Ears, Nose and Headaches/Migraines 9
H Parents who don't want help Ask For Help or Advice 11
T Will lemon balm help against benzodiazepine's physical anxiety? Ask For Help or Advice 21

Similar threads

Top