Giraffe
Member
- Joined
- Jun 20, 2015
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We all intuitively understand when a person is dead: the breathing stopped, the heart stopped beating and the body has become cold.
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Here is a couple of things I came across reading about transplant medicine and listening to testimonials of parents who had agreed to organ donation after their son or daughter had been declared brain dead.
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"opting in policy" vs "opting out policy": In many countries you need to actively opt out if you decide not to donate your organs. In other countries (e.g. Germany, US) you need to opt in. Family members can be asked to take the decision for you if you have not declared what your wish is. If you are abroad the law of the country where you are is applicable.
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Here is an open letter in German:
Offener Brief über die dunkle Seite der Organspende
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Here is a couple of things I came across reading about transplant medicine and listening to testimonials of parents who had agreed to organ donation after their son or daughter had been declared brain dead.
- Only a couple of hours after their son or daughter was hospitalized parents were asked if they agree with organ donation. The options they were given: (a) we stop life support, (b) we arrange for organ donation. (Important to understand: Once the hospital has declared the patient brain dead, the health insurance will not pay any further treatment.)
- The parents were not informed what organ procurement (aka harvesting) practically means.
- They were not informed what "brain dead" means. Requirements for diagnosis differ between countries, and some doctors say there is no such a thing as brain death: what we see is a coma. The parents knew nothing of this.
- The procedure to diagnose brain death includes that the patient is taken off pain killers and subjected to pain and stress.
- For me to be with my loved ones when they are dying is an important part of coming to accept their death, it is part of the grieving. To have your loved ones around when you die is consoling. All this is denied to organ donors and their loved ones.
- The patients who were declared brain dead looked like most other patients in ICU: they are sleeping, the body is warm, the heart is beating, they are mechanically ventilated ... To see them like this makes it harder for the parents to come to terms with their death, and often the announcement that the patient is dead (or brain dead) came very surprising.
- You can't get living organs from a person that has died. There would be blood clots that make the organs unusable. So during organ procurement surgery the organ donor is mechanically ventilated. The hands are fixated during the surgery. The surgeon cuts him open from throat to pubic bone. This is often followed by a raise in heart beat, blood pressure, sweating, reddening of the skin. These symptoms normally are considered as a sign of pain, but not in the so-called brain dead. (In Switzerland though they always give very heavy pain killers before they start.)
- The heart is the last organ that is taken out. Biological death occurs as the result of this surgery.
- Parents later beat themselves for having taken a decision without understanding the consequences. They think that they failed to protect their child. Several mothers (among them two nurses) described that they wanted to see their child again after organ procurement, and what they saw was a face that looked terrified.
- In cases where parents later thought "something doesn't add up" and demanded the hospital records it turned out that the diagnosis "brain dead" was questionable to say the least. And there are several reports of parents who refused to give in, and who successfully fought to get their child transferred to a different hospital. And guess what? These people are alive, and there were no lasting neurological issues.
- In some cases mother and father were not able to talk with each other about what has happened and how they feel. Many are traumatized for very many years.
......
"opting in policy" vs "opting out policy": In many countries you need to actively opt out if you decide not to donate your organs. In other countries (e.g. Germany, US) you need to opt in. Family members can be asked to take the decision for you if you have not declared what your wish is. If you are abroad the law of the country where you are is applicable.
.....
Here is an open letter in German:
Offener Brief über die dunkle Seite der Organspende