ecstatichamster
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- Joined
- Nov 21, 2015
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Are you taking thyroid @Milena
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Nope, no thyroid. Can't get it off-prescription and my doctors says my labs are fine. No money to go private. Hey ho! Maximise the nutrition :) or win the lottery :PAre you taking thyroid @Milena
Thanks, ecstatichamster. I agree with you but in October 16, I persuaded my consultant (sarcoidosis) to do thyroid tests (but only TSH & T4, she did try to order T3 - which I asked for - but couldn't and rT3 was a lost cause - I have never been able to persuade them to do a PTH test either). I got the results in Feb (don't ask, getting a copy of my bloods each time takes ages) and the head honcho consultant said they were fine. From what I remember (results are lost on computer at work and I'm on leave) the TSH look slightly high, in-range and the T4 in-range (I can't remember if it was max or not). To me, that indicated there was feedback pressure to increase TSH (successful) and that the problem was either T4 to T3 conversion, T3 utilisation or rT3 high. Since then I got a thermometer (although I knew it would be low) and confirmed the thyroid cycle was not working as it should. As I can't change doctors (NHS GP and consultants), and all the ones I have sing off the same page, I have to do what I can to maximise things without medication. I can't get progesterone or pregnelone either. Weirdly, the same consultant was happy to prescribe high doses of Spironolactone (which I now see is determined to have some progestonic effects (I would contend it's the other way round with progesterone regulating aldosterone as one of its functions but I haven't looked into the other effects of Spironolactone, particularly in respect to its oft-quoted use for male-female gender swaps). He was not NICE compliant and didn't check my levels. If my adrenals have been hammered, the external region regenerates first and this could be why I produce aldosterone above most other adrenals hormones atm. I am hoping to redress this balance. I don't think he would prescribe progesterone although this may damp down my Th1 dominance for granulomatous development. I noted early on after my diagnosis that progesterone dominates in pregnancy (to avoid abortion due to Th1 response) and provide a swing towards Th2 but having detailed conversations is difficult with specialists outside their field. Even discussing Vit D deficiency was hard and then, eventually, I persuaded them to so the test and I was deficient (not low) but that was easily sorted but still not discussable beyond supplementation prescription.You sound hypo. You could possibly get some and try it. Or fish head soup or chicken neck broth. But you really seem hypo. Maybe you can see a different doctor.
Sorry to miss this. I've tried a few things now. The foot pain is swelling. Spironolactone reduces it to manageable proportions (except when I run out) I'm not sure if progesterone helped or t4/t3 which I tried.Take some T4+T3 with a sugary drink/food before sleep. Or/and some progesterone. I think that would reduce hurt feet in the morning. Also, do you sleep in a very cold room?