JazTee
Member
- Joined
- Aug 25, 2020
- Messages
- 20
Hi all,
I recently posted a thread here: (Feeling Terrible at 22) where I basically listed all my symptoms and recieved some amazing advice for my metabolism, overall dietary health etc. I suggest reading this post first to get an insight into my lifestyle and health.
(TL-DR; I basically starved & binged most of my childhood, ****88 up my metabolism, ate 95% PUFA diet, over-exercised & under-exercised, traumatic childhood, basically the recipe for disaster).
I went to the hospital today (rheumatology dep) to see about my severe joint pain and fatigue. The Dr did a very thorough physical examination and has diagnosed me with Hypermobile Ehlers-Danlos Syndrome. I have also had bloods taken to double check the inflammation they found in my blood 6 weeks ago - just to see if I have an inflammatory condition or something ontop of the hEDS. I have spent the past 2 hours doing research into the condition and, yeah, all of my symptoms match up. It's nice to know that I'm not just being sensitive and that my pain is actually real and I do have a condition that causes me to be exhausted and that I'm not just lazy.
Though, I can't find much information about its treatment. It's a connective tissue disorder - so I'm just wondering, should I try increasing my gelatine/collagen intake to see if it'll help? I'm also on the way of healing my metabloism at the same time so I am eating about 2,000+ calories a day and trying really hard to nourish my body and not over-excercise. So I have a lot to think about in terms of my health at the moment. Kinda freaking out a bit, but trying to use this diagnosis as direction and motivation and not a burden.
If anyone has any suggestions about what I could possibly do to help my hEDS that would be great. I really love hiking and walking - and I don't want to get to the point where I can't walk anymore because I'm already suffering with my joints and energy and currently spending 2-3 days in bed or on the sofa every week. I really need to fix this and I need to be active and healthy - just as we all want to on here. I'm extremely nervous that I am more prone to developing arthritis and could end up with arthritis in my 30s. So kind of feel a lot of pressure to fix myself while I'm in my 20s.
Thanks so much everyone.
Have a great day!
-Jaz
I recently posted a thread here: (Feeling Terrible at 22) where I basically listed all my symptoms and recieved some amazing advice for my metabolism, overall dietary health etc. I suggest reading this post first to get an insight into my lifestyle and health.
(TL-DR; I basically starved & binged most of my childhood, ****88 up my metabolism, ate 95% PUFA diet, over-exercised & under-exercised, traumatic childhood, basically the recipe for disaster).
I went to the hospital today (rheumatology dep) to see about my severe joint pain and fatigue. The Dr did a very thorough physical examination and has diagnosed me with Hypermobile Ehlers-Danlos Syndrome. I have also had bloods taken to double check the inflammation they found in my blood 6 weeks ago - just to see if I have an inflammatory condition or something ontop of the hEDS. I have spent the past 2 hours doing research into the condition and, yeah, all of my symptoms match up. It's nice to know that I'm not just being sensitive and that my pain is actually real and I do have a condition that causes me to be exhausted and that I'm not just lazy.
Though, I can't find much information about its treatment. It's a connective tissue disorder - so I'm just wondering, should I try increasing my gelatine/collagen intake to see if it'll help? I'm also on the way of healing my metabloism at the same time so I am eating about 2,000+ calories a day and trying really hard to nourish my body and not over-excercise. So I have a lot to think about in terms of my health at the moment. Kinda freaking out a bit, but trying to use this diagnosis as direction and motivation and not a burden.
If anyone has any suggestions about what I could possibly do to help my hEDS that would be great. I really love hiking and walking - and I don't want to get to the point where I can't walk anymore because I'm already suffering with my joints and energy and currently spending 2-3 days in bed or on the sofa every week. I really need to fix this and I need to be active and healthy - just as we all want to on here. I'm extremely nervous that I am more prone to developing arthritis and could end up with arthritis in my 30s. So kind of feel a lot of pressure to fix myself while I'm in my 20s.
Thanks so much everyone.
Have a great day!
-Jaz