Do You Have Cfs/me Or Pots And Have You Good Experience With Ray Peat's Principles?

Hgreen56

Member
Joined
Apr 8, 2020
Messages
594
I wondering i here are people with cfs/me or pots (or other heavy chronic fatigue disease) that have great benifits with ray's guidelines.
(or maybe you know people who have a good experience)

So
1: Tell me what you have
2: how old you are
3: what helped you the most? (thinks like food, diets, exercise, breathing etc)
Tell me your personal story.

(This topic is to convince & motivate other people who have these diseases to try Ray peat guidelines but are to afraid to try it or don't believe in it)
 

Jayvee

Member
Joined
Sep 10, 2020
Messages
184
Hey! Also suffering from CFS and interested to know more. From the little information I know so far, I can only see how this may be beneficial for CFS. The reputable studies I have seen have identified causes of Chronic Fatigue from either hormonal imbalance, Mitochondrial dysfunction, Gut Imbalances or Lymphatic drainage issues. If all or some of these are the causes of CFS then it would seem that this would only be beneficial. A doctor here in the UK is treating CFS successfully (it seems) with some of Ray's ideas around the importance of thyroid hormones and it's effects on the Mitochondria. It would be really interesting to hear more on this from either Ray or someone more knowledgable.
 

orewashin

Member
Joined
Jun 16, 2020
Messages
327
CFS may be difficult to treat because of a self- propelling cycle (brain damage -> orthostatic stress -> failure to heal brain or further damage)

Healing Midbrain Damage (chronic Fatigue Syndrome)

I Peated for almost a decade and my CFS only got worse. Orthostatic stress weighs on you far more than a bad diet and it's an important consideration in this disease.
 

Recoen

Member
Joined
Jun 8, 2020
Messages
592
CFS may be difficult to treat because of a self- propelling cycle (brain damage -> orthostatic stress -> failure to heal brain or further damage)

Healing Midbrain Damage (chronic Fatigue Syndrome)

I Peated for almost a decade and my CFS only got worse. Orthostatic stress weighs on you far more than a bad diet and it's an important consideration in this disease.
Do you crave salt because of your dysautonomia?

My POTs is healed when I take B1 and B2.
 

SB4

Member
Joined
Sep 25, 2016
Messages
283
I have post viral POTS which shares a lot with CFS and higher or even moderate carb makes my symptoms significantly worse. B1 helps but wears off pretty quick. I think there is something wrong in a subset of people with CFS where glucose metabolism is messed up. Several people report improvement of symptoms with low carb.

I think lowering PUFA would be beneficial in a general sense but don't think it will have a significant impact on CFS.
 

orewashin

Member
Joined
Jun 16, 2020
Messages
327
Do you crave salt because of your dysautonomia?

My POTs is healed when I take B1 and B2.
It's hard to tell because I had postural hypotension since I was a kid. I think so.

I add salt to my drinks. If I don't, I crave chips or whatever else I associate with saltiness. I salt my meat until it forms a blanket, and even then try to scoop up more salt with each bite. I do it even if it burns my mouth because I want the taste. If it's not salted enough, I end up reaching for the salt. So yes, I probably crave salt more than the average person.

My hematocrit is above-normal, but dropped when I moved to high altitude. It didn't make sense to me at the time. Now I understand that my hematocrit was probably high to compensate for the OI, and that the higher CO2 of high altitude increased blood flow to the head, which made my hematocrit drop to normal.

RP said B2 is the B vitamin with the lowest likelihood of being free of harmful impurities.
 

snacks

Member
Joined
Jun 30, 2020
Messages
388
Location
Rostov-on-Don, Russia/Southern United States
I wondering i here are people with cfs/me or pots (or other heavy chronic fatigue disease) that have great benifits with ray's guidelines.
(or maybe you know people who have a good experience)

So
1: Tell me what you have
2: how old you are
3: what helped you the most? (thinks like food, diets, exercise, breathing etc)
Tell me your personal story.

(This topic is to convince & motivate other people who have these diseases to try Ray peat guidelines but are to afraid to try it or don't believe in it)

1. I've been diagnosed with all kinds of things, don't really know what the issue is/was
2. 20-23, won't state my exact stage
3. Self-discipline

There's a very real side to "the energy you give is the energy you have", and while fixing deficiencies and playing whack-a-mole with diagnoses can be helpful, for most people on this forum I believe that the right thing to do would be to just put as much work into consciously improving one's habits and life as doing research and trying to find miracle chemicals. This goes especially for members with weight issues, social issues and discipline/work ethic issues
 

Recoen

Member
Joined
Jun 8, 2020
Messages
592
I have post viral POTS which shares a lot with CFS and higher or even moderate carb makes my symptoms significantly worse. B1 helps but wears off pretty quick. I think there is something wrong in a subset of people with CFS where glucose metabolism is messed up. Several people report improvement of symptoms with low carb.

I think lowering PUFA would be beneficial in a general sense but don't think it will have a significant impact on CFS.
My POTs and many other issues were post viral too. And I have to take some B1 and B2 pretty much everyday to keep it at bay. I am healing though as my last test showed I could go 5d in the first half of my cycle and 3d in the second without them before my POTs issues returned.

I don’t do well with low carb- rhabdo, keto acidosis, etc.
 

Recoen

Member
Joined
Jun 8, 2020
Messages
592
It's hard to tell because I had postural hypotension since I was a kid. I think so.

I add salt to my drinks. If I don't, I crave chips or whatever else I associate with saltiness. I salt my meat until it forms a blanket, and even then try to scoop up more salt with each bite. I do it even if it burns my mouth because I want the taste. If it's not salted enough, I end up reaching for the salt. So yes, I probably crave salt more than the average person.

My hematocrit is above-normal, but dropped when I moved to high altitude. It didn't make sense to me at the time. Now I understand that my hematocrit was probably high to compensate for the OI, and that the higher CO2 of high altitude increased blood flow to the head, which made my hematocrit drop to normal.

RP said B2 is the B vitamin with the lowest likelihood of being free of harmful impurities.
I’m using energin for B2

I ask about the salt cravings because of Gilbert Lings work. I definitely think his research is worth reading. He clearly shows why people with compromised metabolism crave salt.
 

DB_2014

Member
Joined
Jul 29, 2018
Messages
59
I have hyperadrenergic POTS. I’ve been through the ringer with treatments for 5 years. Every diet and supplement you can imagine. Peating hasn’t come close to curing me by any means. I do find it seems to be slowing my decline though. Low carb and carnivore dramatically increased the speed of my decline. POTS is such a bizarre disease though that I really didn’t come in to peating expecting to be cured. I think there are some extreme structural and genetic components with most POTS patients that no amount of dieting or peating can fix. Aspirin, sugar, and thiamine definitely have helped keep me from getting worse though.
 

Vinny

Member
Joined
Dec 11, 2018
Messages
1,175
Age
48
Location
Paphos, Cyprus
I wondering i here are people with cfs/me or pots (or other heavy chronic fatigue disease) that have great benifits with ray's guidelines.
(or maybe you know people who have a good experience)

So
1: Tell me what you have
2: how old you are
3: what helped you the most? (thinks like food, diets, exercise, breathing etc)
Tell me your personal story.

(This topic is to convince & motivate other people who have these diseases to try Ray peat guidelines but are to afraid to try it or don't believe in it)
1: I suspect I have CFS - been like a zombie since 2014 (don't know what's POTS)
2: 48 yo
3: Nothing from the Peat's principles made any positive difference so far, except that they turned me almost morbidly obese. Going carnivore had a slight beneficial effect.
Now concentrated on ruling out possible bacterial /viral /parasite infection.
 
Last edited:

Recoen

Member
Joined
Jun 8, 2020
Messages
592
I have hyperadrenergic POTS. I’ve been through the ringer with treatments for 5 years. Every diet and supplement you can imagine. Peating hasn’t come close to curing me by any means. I do find it seems to be slowing my decline though. Low carb and carnivore dramatically increased the speed of my decline. POTS is such a bizarre disease though that I really didn’t come in to peating expecting to be cured. I think there are some extreme structural and genetic components with most POTS patients that no amount of dieting or peating can fix. Aspirin, sugar, and thiamine definitely have helped keep me from getting worse though.
Have you tried B2? B1 and B2 supplements “cure” my HyperPOTs. When I stop taking them after a few days my symptoms come back. I don’t need large doses of each, and I do poorly if I do, but I need them frequently throughout the day. Peats other principles have been crucial for my high nore- and epinephrine.
 

Hgreen56

Member
Thread starter
Joined
Apr 8, 2020
Messages
594
I have hyperadrenergic POTS. I’ve been through the ringer with treatments for 5 years. Every diet and supplement you can imagine. Peating hasn’t come close to curing me by any means. I do find it seems to be slowing my decline though. Low carb and carnivore dramatically increased the speed of my decline. POTS is such a bizarre disease though that I really didn’t come in to peating expecting to be cured. I think there are some extreme structural and genetic components with most POTS patients that no amount of dieting or peating can fix. Aspirin, sugar, and thiamine definitely have helped keep me from getting worse though.
what do you mean with this? dont understand... you talking about your health is going down?
 

DB_2014

Member
Joined
Jul 29, 2018
Messages
59
what do you mean with this? dont understand... you talking about your health is going down?

Not sure what the confusion is, I stated it pretty clearly. Peating has not cured me, but it is slowing my decline.
 

Jem Oz

Member
Joined
Jun 13, 2016
Messages
406
Had POTS on and off last year and start of this year. Was in hospital when it first started, thought my heart was failing.

Completely healed for several months now, and feel quite confident it won’t return. It’s a tricky thing. So many variables and possible causes/cures.

one thing that can’t be discounted: the role of psychic distress, anxiety, unacknowledged trauma. I’ve put the most work into that stuff over the past year and every health issue I had last year has resolved. Touch wood.

also the possibility that it’s plain old hypothyroidism. I’m sure I’ve read Peat saying that before.

it can be a horrible, scary experience. And frustrating. Glad I saw the back of it and pray it doesn’t return.

my gut feeling is, with me, it was keenly connected with emotional distress that was crying out for attention.

May help, may not.
 
Similar threads
Thread starter Title Forum Replies Date
SB4 Gastroparesis POTS CFS And Mirtazapine Digestion 9
C Severe Pain And CFS Symptoms, Causes 2
johnwester130 Metabolism, CFS And Shadow People With Art Bell Political Talk, Alternative World Theories 0
orewashin Endo Needed For CFS And T4-intolerance Ask For Help or Advice 2
I Salt, Libido, CFS Metabolism 4
D Making Money Online With CFS? Male Issues 9
D CFS/ME/Fibro/Lyme Symptoms, Causes 33
Tarmander Enterobacteria, Weight, Stress And CFS Digestion, Gut Flora 2
debored13 ME/CFS Is A Living Death Health 2
W CFS/ M.E./ Lyme/ Sibo . How To Move Forward? Eyes, Ears, Nose and Headaches/Migraines 13
D Trt And Emf Sensitivity/cfs Male Issues 0
D Being Independent With CFS And EMF Sensitivity Male Issues 0
D CFS/ME And EMF Sensitivity Male Issues 1
D Viruses,CFS And EMF Sensitivity Male Issues 3
D New Study Showing Serotonin - ME/CFS Connection Scientific Studies 3
debored13 Metabolic Trap In ME/CFS Scientific Studies 24
F Cyclobenzaprine For CFS -- But I Have High Serotonin Already! Cortisol, Serotonin, Histamine 8
Lucien Burke Post-Strep ME/CFS Ask For Help or Advice 13
haidut The Anti-cancer Chemical DCA May Treat Chronic Fatigue Syndrome (CFS) Scientific Studies 15
Herbie Realising Counselling And Exercise Is Not Helping CFS Exercise 61
debored13 T1am, The Hormone Behind CFS? Scientific Studies 0
debored13 T1am, The Hormone Behind CFS? Scientific Studies 3
debored13 First Time Trying T3, For Severe CFS. Did Not Help T3 23
haidut Chronic Fatigue Syndrome (ME/CFS) May Be Caused By Increased Serotonin Sensitivity Scientific Studies 92
Blue Jefe ME/CFS Metabolism 24
haidut Pregnenolone As A Possible Treatment Of CFS/ME Scientific Studies 26
haidut CFS/ME Once Again Confirmed As A Metabolic Disorder Scientific Studies 13
haidut The Ability To Metabolize Glucose Is Impaired In CFS/ME Patients Scientific Studies 31
haidut Endotoxin (LPS) Is A Probable Cause For Chronic Fatigue Syndrome (CFS / ME) Scientific Studies 2
haidut CFS Is Likely Hypometabolism Triggered By Environmental Stress Scientific Studies 105
D Beta-alanine, ME-CFS, And Unpleasant Effects Supplements, Pharmaceutical Drugs 0
haidut CFS Pathology Tied To Increased Blood Levels Of Endotoxin Scientific Studies 13
Tawnya Hashimotos CFS T3 Or NDT Female Issues 2
nullredvector Azithromycin, CFS, And Acetylcarnitine Pharmaceutical Drugs 3
haidut Clonidine May Treat CFS Scientific Studies 2
M Another "CFS"er Meet & Greet 6
A Newbie with ME/CFS, fibromyalga and food sensitivities Meet & Greet 4
N New member hopes Peatarian lifestyle helps CFS Meet & Greet 5
B Starting With Fibromyalgia/cfs/post Polio Syn Logs 213
M Supplements To Improve And Strengthen Capillary Walls? POTS, IIH, Dysautonomia Supplements, Pharmaceutical Drugs 7
debored13 White Coat Hypertension, Hypertension, POTS Heart, Heart Rate, Blood Pressure 19
SB4 DHEA + Pregnenolone Helps POTS But Kills Libido? Thyroid and Hormones 25
E POTS! (but Not Pans. ) Heart, Heart Rate, Blood Pressure 82
Ben. Wierd experience with antihelmethics - Thoughts? Viruses, Parasites, Fungus, Vaccines 26
F Any long term Aspirin users experience? Aspirin 27
youngsinatra Post Your Experience With Topical Vitamin A Here Metabolism 18
Cloudhands Pau D'Arco experience Supplements, Pharmaceutical Drugs 47
G Anyone experience negative effects from stomatolgical local anesthesia? Health 4
F Your Red Light Therapy experience? Red Light, Infrared, LLLT 0
F Your CT3M method experience? Ask For Help or Advice 3

Similar threads

Top