CFS/ME/Fibro/Lyme

Discussion in 'Symptoms, Causes' started by davidgraham, Jan 22, 2020.

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Help with severe cfs/me

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  1. davidgraham

    davidgraham Member

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    After trekking in the jungle Asia 2004 I was struck down with CFS - weight loss, fatigue etc. I recovered after a year but was never 100% but still well enough to work full time and exercise well.

    After campylobacter and coli then 10 mercury fillings removed my body was struggling. I then got tick bite Lyme disease with em rash. That was it for me severe cfs/me sofabound. Lost job health wife etc. I took azithromycin and minocyline plus some herbs and supplements. In between here reactions I was starting to feel amazing best id felt in years. When I stopped antibiotics after 5 months I was getting symptoms again so I went part time at work and focused on "health". I started dr morse fruitarian which was hell on earth (stupid I know especially living in cold climate). 3 months fruit I was now the worst I had ever been in my life down to 55kg. Ever since then I have tried multiple diets supplements and herbs not having much luck. Started ray peat 6 months ago and although getting more energy warmer body I am still suffering with symptoms. Every single comprehensive blood test I have done has been normal - thyroid, plasma mineral profile (shows slightly low zinc), b12, fit d fairy high without supplementing and minimal sun.

    Low body temp
    Chronic fatigue
    Bradycardia
    Constant infections
    Low neutrophils
    chronic neck pain
    Low spine burning
    Severe wrinkles (due to lyme feeding on collagen I believe)
    Weight losss / malnourished

    I did 4 weeks Cypro which helped a lot but kept giving my chest palms. Im on magnesium, fit c, lysine and niacin at the moment. Any idea what to do? Ive tried Gupta, diners and reverse therapy so mind based stuff not working. If I can get my immune system stronger then I feel I could recover as each virus sends me crashing
     
  2. lampofred

    lampofred Member

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    Would you be able to get a CO2 tank? A few CO2 baths might help, since CO2 is so broadly protective and regenerative. It's anti-glutamate, and a very common finding in these diseases (CFS/fibro/etc.) is excess glutamate.
     
  3. shine

    shine Member

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    Try the original Lauricidin (Monolaurin)!
     
  4. Tarmander

    Tarmander Member

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    If antibiotics worked so well, why not go back on them?
     
  5. OP
    davidgraham

    davidgraham Member

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    As I see many lyme patients take antibiotics for years and every time they come off they relapse hard. Once you are on them for lyme its difficult to get off them it scares me
     
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    davidgraham

    davidgraham Member

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    Thanks - will do some research on this again as it does look good
     
  7. OP
    davidgraham

    davidgraham Member

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    Just found one in my area! Will post an update on this when I have a session :)
     
  8. Tarmander

    Tarmander Member

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    Well yeah antibiotics have draw backs, and it would suck to be stuck on them...but what are your alternatives? the shape your in, you aren’t living life. If you have something that works I would use it imo. You get one life
     
  9. OP
    davidgraham

    davidgraham Member

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    I hear you but each time I stop antibiotics I'm actually worse than before them. So with every single I feel better and with every stop I feel worse and worse. It tough knowing what to do
     
  10. Tarmander

    Tarmander Member

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    It sounds like you started fruitarianism last time after antibiotics. Have you for sure isolated this reaction to antibiotics (worse after), or could it be some of these other tactics you have tried?
     
  11. Tarmander

    Tarmander Member

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  12. debored13

    debored13 Member

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    Chronic neck pain -- read mechanicalbasis.org

    I have craniocervical instability. Me/cfs patients often have cervical spine and brainstem issues

    I also think biotoxins and environmental inhaled toxins are totally underrated as causes or contributing factors in me/cfs. I honestly think that even though ray peat talks about pollution some he is missing the level of importance it has. You can't cure an intense toxicity problem just by eating well and revving up your metabolism. At least, i don't believe you can. Nevertheless avoiding the worst offenders in foods that peat talks about, like pufas and beans and wheat, is probably worth doing even if it's not as important as good air. Being in good air and eating pufas Is better than being in bad air and eating a perfect peatarian diet





    Good luck. Severe me/cfs absolutely sucks and is worse than most people can imagine.
     
  13. debored13

    debored13 Member

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    I love co2 breathing but I always just used my parents' seltzer machine rather than a large tank

    Do you get food grade?
     
  14. Constatine

    Constatine Member

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    I've been through something very similar. One thing that helped me was eating a lot of protein. 300 grams a day actually (through mostly chicken as meats too high in iron were hard on me). It pretty much revived me from the dead. Its the only thing that actually bettered my immunity.
     
  15. debored13

    debored13 Member

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    Where do you live?
     
  16. Elchapchapchapo

    Elchapchapchapo Member

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    Hey my man I can relate with the CFS issues and also have brain fog. I dont know if you have seen Klinghardt's work but he has some really great info on lyme. Another thing to look at is LDN which is low dose naltrexone, people wiht lyme can experience issues from my understanding so just a ehads up if you decide to try it. But it seems to work wonders for this camp of people and is next on my list to try. Klinghardt emphsasises binding and i think thats where the ticket is , to get rid of parasites and get the detox pathways firing at high cylinders. Also if you have the resources getting into a real commercial hyperbaric oxygen chamber can have tons of benefits for lyme.
     
  17. berk

    berk Member

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    @debored13
    Do you feel a difference between a forrest and a empty nature area?

    quality air must be at best between lot of tree's
     
  18. berk

    berk Member

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  19. thomas00

    thomas00 Member

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    tried thyroid?
     
  20. debored13

    debored13 Member

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    There are good areas in various biomes. Trees can act as natural filters, it's true , but I've felt as good in death valley as in dense pine forests. I think the key thing is to experiment with intuition as a guide
     
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