Moon Lamp
Member
- Joined
- Mar 12, 2019
- Messages
- 5
If anyone can point me in the right direction here you will help someone who's at their whit's end help relieve them of a burden that has weighed on their life tremendously.
I've had intermittent painless parodital swelling on both sides of the face for at least 7 years, it was subtle enough at first that it was only once it started giving me a visible deformation (yes it gets that bad) that I knew I had to seek treatment, it was not going away on it's own.
3 years later and 2 md's, 2 ENT's, naturopaths, some other type of specialist, tons of tests including two biopsys, and all the doctors have found out is that prednozon, or some similar sounding steroid took my swelling away on first use.
I found by my own desperate experimentation that the only things that zaps it perfectly and right away are disassociative anaesthetic drugs with IMMUNO-MODULATORY behaviors. For some reason the drugs of this class that have immunomodulatory properties temporarily cure me every time-what does this mean? Within an hour or two of dosing these drugs all the fluid drains and the relief is incredible.
Of course, this is no solution and I'll never be using any of the above mentioned chemicals again since they are untenable long term.
But can any of you thoughtful commenters on this forum suggest what i can take that may have the same action as these drugs without taking those particular immunomodulators (one of which is an immensely addictive steroid with horrific long-term side effects and the others cause intoxication)? SURELY there are immunomodulators that are safe and would have the same effect on my salivary glands and can be used long term...
As time goes on its becoming nearly constant and it has in many ways- despite being painless- made my late 20s and first half of my 30s more of a struggle than they needed to be. This may sound dramatic but I suggest you'd change that view if you lived never knowing when you'd look like yourself when you got up each day, or whether your face will have a distorted appearance at an upcoming night out. I'm treated much differently and feel totally different when the condition is active and when it's not, and the sheer absurdity of this is maddening.
Anyways, this is not a sob story it's not for sympathy that I tell it to you; I'm just trying to convey my desperation, as well as my advance gratitude for anyone who might read this and have some suggestion that i may not have yet tried.
Thank you.
I've had intermittent painless parodital swelling on both sides of the face for at least 7 years, it was subtle enough at first that it was only once it started giving me a visible deformation (yes it gets that bad) that I knew I had to seek treatment, it was not going away on it's own.
3 years later and 2 md's, 2 ENT's, naturopaths, some other type of specialist, tons of tests including two biopsys, and all the doctors have found out is that prednozon, or some similar sounding steroid took my swelling away on first use.
I found by my own desperate experimentation that the only things that zaps it perfectly and right away are disassociative anaesthetic drugs with IMMUNO-MODULATORY behaviors. For some reason the drugs of this class that have immunomodulatory properties temporarily cure me every time-what does this mean? Within an hour or two of dosing these drugs all the fluid drains and the relief is incredible.
Of course, this is no solution and I'll never be using any of the above mentioned chemicals again since they are untenable long term.
But can any of you thoughtful commenters on this forum suggest what i can take that may have the same action as these drugs without taking those particular immunomodulators (one of which is an immensely addictive steroid with horrific long-term side effects and the others cause intoxication)? SURELY there are immunomodulators that are safe and would have the same effect on my salivary glands and can be used long term...
As time goes on its becoming nearly constant and it has in many ways- despite being painless- made my late 20s and first half of my 30s more of a struggle than they needed to be. This may sound dramatic but I suggest you'd change that view if you lived never knowing when you'd look like yourself when you got up each day, or whether your face will have a distorted appearance at an upcoming night out. I'm treated much differently and feel totally different when the condition is active and when it's not, and the sheer absurdity of this is maddening.
Anyways, this is not a sob story it's not for sympathy that I tell it to you; I'm just trying to convey my desperation, as well as my advance gratitude for anyone who might read this and have some suggestion that i may not have yet tried.
Thank you.
